Using patient reported outcome measures in health services: a qualitative study on including people with low literacy skills and learning disabilities

Jahagirdar, D., Kroll, T., Ritchie, K. and Wyke, S. (2012) Using patient reported outcome measures in health services: a qualitative study on including people with low literacy skills and learning disabilities. BMC Health Services Research, 12(431), (doi:10.1186/1472-6963-12-431)

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Abstract

<p>Background: Patient reported outcome measures (PROMs) are self-report measures of health status increasingly promoted for use in healthcare quality improvement. However people with low literacy skills or learning disabilities may find PROMs hard to complete. Our study investigated stakeholder views on the accessibility and use of PROMs to develop suggestions for more inclusive practice.</p> <p>Methods: Taking PROMs recommended for chronic obstructive pulmonary disease (COPD) as an example, we conducted 8 interviews with people with low literacy skills and/or learning disabilities, and 4 focus groups with 20 health professionals and people with COPD. Discussions covered the format and delivery of PROMs using the EQ-5D and St George Respiratory Questionnaire as prompts. Thematic framework analysis focused on three main themes: Accessibility, Ease of Use, and Contextual factors.</p> <p>Results: Accessibility included issues concerning the questionnaire format, and suggestions for improvement included larger font sizes and more white space. Ease of Use included discussion about PROMs’ administration. While health professionals suggested PROMs could be completed in waiting rooms, patients preferred settings with more privacy and where they could access help from people they know. Contextual Factors included other challenges and wider issues associated with completing PROMs. While health professionals highlighted difficulties created by the system in managing patients with low literacy/learning disabilities, patient participants stressed that understanding the purpose of PROMs was important to reduce intimidation.</p> <p>Conclusions: Adjusting PROMs’ format, giving an explicit choice of where patients can complete them, and clearly conveying PROMs’ purpose and benefit to patients may help to prevent inequality when using PROMs in health services.</p>

Item Type:Articles
Status:Published
Refereed:Yes
Glasgow Author(s) Enlighten ID:Wyke, Professor Sally and Jahagirdar, Ms Deepa
Authors: Jahagirdar, D., Kroll, T., Ritchie, K., and Wyke, S.
College/School:College of Medical Veterinary and Life Sciences > Institute of Health and Wellbeing > Social Scientists working in Health and Wellbeing
College of Social Sciences
Journal Name:BMC Health Services Research
Publisher:Biomed Central
ISSN:1472-6963
ISSN (Online):1472-6963
Published Online:26 November 2012
Copyright Holders:Copyright © 2012 The Authors
First Published:First published in BMC Health Services Research 12:431
Publisher Policy:Reproduced under a Creative Commons License

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