Towards a virtual research environment for paediatric endocrinology across Europe

Jiang, J., Sinnott, R.O., Stell, A., Watt, J. and Ahmed, F. (2009) Towards a virtual research environment for paediatric endocrinology across Europe. In: Cappello, F., Wang, C.L. and Buyya, R. (eds.) 9th IEEE/ACM International Symposium on Cluster Computing and the Grid CCGrid 2009, Shanghai, China, May 18-21, 2009. IEEE Computer Society: Los Alamitos, USA, pp. 496-501. ISBN 9781424439355 (doi: 10.1109/CCGRID.2009.68)

Abstract

Paediatric endocrinology is a medical specialty dealing with variations of physical growth and sexual development in childhood. Genetic anomalies that can cause disorders of sexual development in children are rare. Given this, sharing and collaboration on the small number of cases that occur is needed by clinical experts in the field. The EU-funded EuroDSD project (www.eurodsd.eu) is one such collaboration involving clinical centres and clinical and genetic experts across Europe. Through the establishment of a virtual research environment (VRE) supporting sharing of data and a variety of clinical and bioinformatics analysis tools, EuroDSD aims to provide a research infrastructure for research into disorders of sex development. Security, ethics and information governance are at the heart of this infrastructure. This paper describes the infrastructure that is being built and the inherent challenges in security, availability and dependability that must be overcome for the enterprise to succeed.

• Item Type: Book Sections
• Keywords: Data security, data-grids, paediatric endocrinology, virtual research environment
• Status: Published
• Refereed: Yes
• Glasgow Author(s) Enlighten ID: Stell, Mr Anthony and Watt, Dr John and Jiang, Mr Jipu and Sinnott, Professor Richard
• Authors: Jiang, J., Sinnott, R.O., Stell, A., Watt, J., and Ahmed, F.
• Subjects: Q Science > QA Mathematics > QA75 Electronic computers. Computer science
• College/School: University Services > IT Services > Computing Service
• Publisher: IEEE Computer Society
• ISBN: 9781424439355
• Copyright Holders: Copyright © 2009 IEEE Computer Society
• Publisher Policy: Reproduced in accordance with the copyright policy of the publisher.