A UK-wide survey of follow-up practices for patients with high-grade glioma treated with radical intent

Catt, S. L., Anderson, J. L., Chalmers, A. J. and Fallowfield, L. J. (2011) A UK-wide survey of follow-up practices for patients with high-grade glioma treated with radical intent. Journal of Evaluation in Clinical Practice, 17(1), pp. 1-6. (doi: 10.1111/j.1365-2753.2009.01292.x)

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Publisher's URL: http://dx.doi.org/10.1111/j.1365-2753.2009.01292.x

Abstract

<b>Rationale and objective</b>  High-grade glioma profoundly affects patients and their families. The best ongoing care for patients completing radical treatment is uncertain. To address this issue a UK-wide audit surveying the follow-up practices of multidisciplinary cancer teams was conducted. <p></p> <b>Method</b>  An online survey package was used with a paper version available. <p></p> <b>Results</b>  Of 102 clinicians approached 86 replied, a response rate of 84%. Three-monthly outpatient department appointments led by an oncologist and a specialist nurse were the norm, but more controversially, some centres conduct joint clinics with the whole neurosurgical/oncology team present or available. Nurse-led telephone follow-up in place of hospital visits is uncommon. Regular scanning is conducted despite the clinical benefits being contentious. Access to a range of allied services providing supportive care is considered, but the actual levels of need and the efficiency with which they are delivered require further investigation. <p></p> <b>Conclusions</b>  The picture of UK follow-up practices revealed by this survey demonstrates that research is now needed to determine what preferences patients and families have for follow-up and their satisfaction with these.<p></p>

Item Type:Articles
Status:Published
Refereed:Yes
Glasgow Author(s) Enlighten ID:Chalmers, Professor Anthony
Authors: Catt, S. L., Anderson, J. L., Chalmers, A. J., and Fallowfield, L. J.
College/School:College of Medical Veterinary and Life Sciences > School of Cancer Sciences
Journal Name:Journal of Evaluation in Clinical Practice
Publisher:Wiley Blackwell Publishing
ISSN:1356-1294
ISSN (Online):1365-2753
Published Online:08 December 2010
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Project CodeAward NoProject NamePrincipal InvestigatorFunder's NameFunder RefLead Dept
563531Overcoming treatment resistance in glioblastoma multiforme by tumour specific inhibition of DNA repairAnthony ChalmersMedical Research Council (MRC)G0802755ICS - PATHOLOGY
563532Overcoming treatment resistance in glioblastoma multiforme by tumour specific inhibition of DNA repairAnthony ChalmersMedical Research Council (MRC)G0802755ICS - PATHOLOGY