Stewart, E. , SIPHER Greater Manchester Community Panel, , SIPHER Scotland Community Panel, , SIPHER Sheffield Community Panel, and Such, E. (2024) Evaluating participant experiences of Community Panels to scrutinise policy modelling for health inequalities: the SIPHER Consortium. Research Involvement and Engagement, 10, 4. (doi: 10.1186/s40900-023-00521-7) (PMID:38191500) (PMCID:PMC10775539)
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Abstract
Data-intensive research, including policy modelling, poses some distinctive challenges for efforts to mainstream public involvement into health research. There is a need for learning about how to design and deliver involvement for these types of research which are highly technical, and where researchers are at a distance from the people whose lives data depicts. This article describes our experiences involving members of the public in the SIPHER Consortium, a data-intensive policy modelling programme with researchers and policymakers working together over five years to try to address health inequalities. We focus on evaluating people’s experiences as part of Community Panels for SIPHER. Key issues familiar from general public involvement efforts include practical details, careful facilitation of meetings, and payment for participants. We also describe some of the more particular learning around how to communicate technical research to non-academic audiences, in order to enable public scrutiny of research decisions. We conclude that public involvement in policy modelling can be meaningful and enjoyable, but that it needs to be carefully organised, and properly resourced.
| Item Type: | Articles |
|---|---|
| Additional Information: | This work by the SIPHER Consortium was supported by the UK Prevention Research Partnership (MR/S037578/2), which is funded by the British Heart Foundation, Cancer Research UK, Chief Scientist Office of the Scottish Government Health and Social Care Directorates, Engineering and Physical Sciences Research Council, Economic and Social Research Council, Health and Social Care Research and Development Division (Welsh Government), Medical Research Council, National Institute for Health Research, Natural Environment Research Council, Public Health Agency (Northern Ireland), The Health Foundation and Wellcome. |
| Keywords: | data-intensive research, policy modelling, public involvement, evaluation, health inequalities. |
| Status: | Published |
| Refereed: | Yes |
| Glasgow Author(s) Enlighten ID: | Stewart, Professor Ellen |
| Authors: | Stewart, E., SIPHER Greater Manchester Community Panel, , SIPHER Scotland Community Panel, , SIPHER Sheffield Community Panel, , and Such, E. |
| College/School: | College of Social Sciences > School of Social and Political Sciences > Urban Studies |
| Journal Name: | Research Involvement and Engagement |
| Publisher: | BioMed Central |
| ISSN: | 2056-7529 |
| ISSN (Online): | 2056-7529 |
| Copyright Holders: | Copyright © 2023 The Author(s) |
| First Published: | First published in Research Involvement and Engagement 10:4 |
| Publisher Policy: | Reproduced under a Creative Commons license |
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