Welisch, G., Keith, N. , Jones, R. and Hanna, C. (2024) Creative approaches to reimagining patient and public involvement (PPI) in cancer research. Project Report. OSF. (doi: 10.17605/OSF.IO/243XN).
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Abstract
This study investigates the role of Patient and Public Involvement (PPI) in cancer research through interviews with patient representatives, researchers, and professionals with personal cancer experience, aiming to identify challenges and opportunities in current PPI practices. It emphasises the need for effective communication, diverse participation, and a co-creative approach. The work delves not only into the 'how' but also the 'why', offering recommendations that hope to contribute to ongoing discussions and practices.
| Item Type: | Research Reports or Papers (Project Report) |
|---|---|
| Additional Information: | This work was made possible and supported by NHS Greater Glasgow & Clyde Endowment Fellowship Funding (Award number GN21ON382). Additional support provided by the Glasgow Experimental Cancer Medicine Centre (ECMC - Cancer Research UK and The Chief Scientist’s Office, Scotland, grant award A25174 ) and the CRUK Scotland Clinical Trials Unit (Cancer Research UK award reference, CTUWDFDec22/100002). |
| Keywords: | cancer research, cancer trials, co-creative approaches, community engagement in research, diverse participation, engagement methods, ethical research practices, inclusive health research, participatory research, patient advocacy, patient and public involvement, patient experience, PPI, research impact, stakeholder engagement, user-centered design in healthcare. |
| Status: | Published |
| Glasgow Author(s) Enlighten ID: | Keith, Professor Nicol and Hanna, Catherine and Jones, Professor Robert and Welisch, Mr Gaston |
| Creator Roles: | Welisch, G.Conceptualization, Methodology, Formal analysis, Investigation, Resources, Data curation, Writing – original draft, Writing – review and editing, Visualization, Project administration, Funding acquisition Hanna, C.Conceptualization, Methodology, Formal analysis, Investigation, Resources, Data curation, Writing – original draft, Writing – review and editing, Visualization, Supervision, Project administration, Funding acquisition Jones, R.Conceptualization, Resources, Writing – review and editing, Supervision, Project administration, Funding acquisition Keith, N.Conceptualization, Resources, Writing – review and editing, Supervision, Project administration, Funding acquisition |
| Authors: | Welisch, G., Keith, N., Jones, R., and Hanna, C. |
| College/School: | College of Medical Veterinary and Life Sciences > School of Cancer Sciences |
| Research Centre: | Mazumdar-Shaw Advanced Research Centre (ARC) > Global Sustainable Development |
| Publisher: | OSF |
| Published Online: | 18 January 2024 |
| Copyright Holders: | Copyright © 2024 The Authors |
| Publisher Policy: | Reproduced under a Creative Commons License |
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