American Diabetes Association (ADA). (2013). Diabetes care in the school and day care setting. Diabetes Care, 36(1), 75-79. https://doi.org/10.2337/dc13-S075
Association of Diabetes Care and Education Specialists (ADCES). (2016). Management of children with diabetes in the school setting. Retrieved November 28, 2021, from https://www.diabeteseducator.org/docs/default-source/practice/practice-documents/position-statements/management-of-children-with-diabetes-in-the-school-setting.pdf?sfvrsn=4
Atkinson, M. A., Eisenbarth, G. S., & Michels, A. W. (2014). Type 1 diabetes. The Lancet, 383(9911), 69–82. https://doi.org/10.1016/s0140-6736(13)60591-7
Bobo, N., Kaup, T., McCarty, P., & Carlson, J. P. (2011). Diabetes management at school: Application of the healthy learner model. The Journal of School Nursing, 27(3), 171- 184. https://doi.org/10.1177/1059840510394190
Boden, S., Lloyd, C. E., Gosden, C., Macdougall, C., Brown, N., & Matyka, K. (2011). The concerns of school staff in caring for children with diabetes in primary school. Pediatric Diabetes, 13(6), 6-13. https://doi.org/10.1111/j.1399-5448.2011.00780.x
Booth, A., Papaioannou, D., & Sutton, A. (2012). Systematic approaches to a successful literature review. Sage.
Brands A. M., Biessels G. J., De Hana E. H., L Kappelle, J., & Kessels, R. P. (2005). The effects of type 1 diabetes on cognitive performance: A meta-analysis. Diabetes Care, 28(3), 726–735. http://dx.doi.org/10.2337/diacare.28.3.726
Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77-101. http://dx.doi.org/10.1191/1478088706qp063oa
Bronfenbrenner, U. (1979). Contexts of child rearing: Problems and prospects. American psychologist, 34(10), 844-850. http://dx.doi.org/10.1037/0003-066X.34.10.844
Carvalho, S. R. (2009). Education for type 2 diabetes mellitus self-care: From compliance to empowerment. Comunicação Saúde Educação, 13(30), 93-106.
http://dx.doi.org/10.1590/S1414-32832009000300009
Council on School Health. (2008). Role of the school nurse in providing school health services. Pediatrics, 121(5), 1052-1056. https://doi.org/10.1542/peds.2008-0382
Creswell, J. W. (2007). Qualitative inquiry & research design: Choosing among five traditions (2nd ed.). Sage.
Davies, D., Jindal-Snape, D., Collier, C., Digby, R., Hay, P., & Howe, A. (2013). Creative learning environments in education: A systematic literature review. Thinking skills and creativity, 8, 80-91. https://doi.org/10.1016/j.tsc.2012.07.004
De Cássia Sparapani, V., Liberatore, R., Damiăo, E. B. C., Oliveira Dantas, I. R., De Camargo, R. A. A., Nascimento, L. C. (2017). Children with type 1 diabetes mellitus: Self-management experiences in school. Journal of School Health, 87(8), 623-629. https://doi.org/10.1111/josh.13289
Department for Education (DfE). (2015). Supporting pupils at school with medical conditions: Statutory guidance for governing bodies of maintained schools and proprietors of academies in England. Retrieved November 21, 2021 from https://assets.publishing.service.gov.uk/government/uploads/system/upl oads/attachment _data/file/803956/supporting-pupilsat-school-with-medicalconditions.pdf
The Department of Education (DFE). (2008). Supporting pupils with medical needs. Retrieved November 28, 2021 from https://www.education-ni.gov.uk/sites/default/files/publications/de/supporting-pupils-with-medical-needs.pdf
Department for Education (DFE). (2019). The independent school standards guidance for independent schools. Retrieved November 28, 2021 from https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/800615/Independent_School_Standards-_Guidance_070519.pdf
Diabetes UK. (n.d.). Your responsibilities as a teacher or trained member of staff. Retrieved November 28, 2021 from https://www.diabetes.org.uk/guide-to-diabetes/your-child-and-diabetes/schools/school-staff/responsibilities-teachers
Dosage Adjustment for Normal Eating (DAFNE). (2021). What is DAFNE? Retrieved November 28, 2021 from https://dafne.nhs.uk/about-dafne/what-is-dafne
East of England Paediatric Diabetes Network. (2014). Diabetes guidelines for schools, colleges & early years settings. Retrieved November 28, 2021 from https://jdrf.org.uk/wp-content/uploads/2015/11/Guidelines-for-schools-colleges-and-early-years-settings2.pdf
Education Scotland. (2021). Getting it Right for Every Child (GIRFEC): Wellbeing (SHANARRI). https://www.gov.scot/policies/girfec/wellbeingindicators-shanarri/
Edwards, D., Noyes, J., Lowes, L., Llinos-Haf, S., & Gregory, J. W. (2014). An ongoing struggle: A mixed-method systematic review of interventions, barriers and facilitators to achieving optimal self-care by children and young people with type 1 diabetes in educational settings. BMC Pediatr, 14(228), 1-27. https://doi.org10.1186/1471-2431-14-228
Evidence for Policy and Practice Information and Co-ordinating Centre (EPPI-Centre). (2010). Methods for conducting systematic reviews. https://eppi.ioe.ac.uk/cms/Default.aspx?tabid=67
Falvey, J., & Anderson, S. K. (2023). Meeting the needs of learners with type 1 diabetes in UK primary schools: A systematic literature review of comparative practices – Appendices A-F. Retrieved 23 December 2023 from: https://www.gla.ac.uk/schools/education/staff/sarahanderson/#publications,articles
Faro, B., Ingersoll, G., Fiore, H., & Ippolito, K. S. (2005). Improving students’ diabetes management through school-based diabetes care. Journal of Pediatric Health Care, 19(5), 301–308. https://doi.org/10.1016/j.pedhc.2005.03.004
Fried, L., Cross, D., Jones, C., Davis, J. (2020). Lessons from schools with high levels of support for students with type 1 diabetes: A qualitative study. Issues in Educational Research, 30(2), 512-531.
Freire, P. (1970). Pedagogy of the oppressed. Continuum.
Funnell, M. M., & Anderson, R. M. (2004). Empowerment and self-management of diabetes. Clin. Diabetes, 22(3), 123-127. https://doi.org/10.2337/diaclin.22.3.123
Gough, D. (2007). Weight of evidence: A framework for the appraisal of the quality and relevance of evidence. Special Edition of Research Papers in Education, 22(2), 213–228. https://doi.org/10.1080/02671520701296189
Graham-Clay, S. (2005). Communicating with parents: Strategies for teachers. School Community Journal, 15(1), 117-129.
Gutzweiler, R. F., Neese, M., & In-Albon, T. (2020). Teachers’ perspectives on children with type 1 diabetes in German kindergartens and schools. Diabetes Spectrum, 33(2), 201-209. https://doi.org/10.2337/ds19-0054
Hellems, M. A., & Clarke, W. L. (2007). Safe at school: A Virginia experience. Diabetes Care, 30(6), 1396–1398. https://doi.org/10.2337/dc07-0121
Herr, K., & Anderson, G. L. (2015). The action research dissertation: A guide for students and faculty. Sage.
Hershey T., Bhargava N., Sadler M., White, N. H., & Craft, S. (1999). Conventional versus intensive diabetes therapy in children with type 1 diabetes: Effects on memory and motor speed. Diabetes Care, 22(8), 1318–1324. https://doi.org/10.2337/diacare.22.8.1318
Hinton, D., & Kirk, S. (2014). Teachers’ perspectives of supporting pupils with long-term health conditions in mainstream schools: A narrative review of the literature. Health & Social Care in the Community, 23(2), 107–120. https://doi.org/10.1111/hsc.12104
Hoekstra, B. A., Young, V. L., Eley, C. V., Hawking, M. K. D., & McNulty, C. A. M. (2016). School nurses’ perspectives on the role of the school nurse in health education and health promotion in England: A qualitative study. Nursing, 15(73), 1-9. https://doi.org/10.1186/s12912-016-0194-y
Hopkins, A. F., & Hughes, M. (2016). Individualized healthcare plans: Supporting children with chronic conditions in the classroom. Young Exceptional Children, 19(2), 33–44. https://doi.org/10.1177/1096250614566538
International Diabetes Federation (IDF). (2019). Diabetes atlas: 9th Edition. Retrieved November 28, 2021 from https://www.diabetesatlas.org/upload/resources/material/20200302_133351_IDFATLAS9e-final-web.pdf#page=38&zoom=auto
Institute of Education Sciences. (2020). School nurses in US public schools. Retrieved November 28, 2021 from https://nces.ed.gov/pubs2020/2020086.pdf
Jackson, C. C., Albanese-O’Neill, A., Butler, K. L., Chiang, J. L., Deeb, L. C., Hathaway, K., Kraus, E., Weissberg-Benchell, J., Yatvin, A. L., & Siminerio, L. M. (2015). Diabetes care in the school setting: A position statement of the American Diabetes Association. Diabetes Care, 38(10), 1958–1963. https://doi.org/10.2337/dc15-1418
JDRF.org.uk (2021a). Type 1 diabetes facts and figures. Retrieved November 28, 2021 from https://jdrf.org.uk/information-support/about-type-1-diabetes/facts-and-figures/
JDRF.org.uk (2021b). KIDSAC: A pack for children with type 1 diabetes. Retrieved November 28, 2021 from https://jdrf.org.uk/information-support/newly-diagnosed/information-packs-and-leaflets/kidsac-pack-children-type-1-diabetes/
JDRF.org.uk (2021c). Type 1 diabetes discovery days. Retrieved November 28, 2021 from https://jdrf.org.uk/information-support/newly-diagnosed/type-1-diabetes-discovery-days/
JDRF.org.uk (2021d) Schools E-learning module. Retrieved November 28, 2021 from https://jdrf.org.uk/for-professionals/school-pack/schools-e-learning-module/
Jefferies, C., Rhodes, E., Rachmiel, M., Chizo, A. J., Kapellen, T., Abdulla, M. A., & Hofer, S. E. (2018). ISPAD clinical practice consensus guidelines 2018: Management of children and adolescents with diabetes requiring surgery. Pediatric Diabetes, 19, 227-236. https://doi.org/10.1111/pedi.12733
Kengne, A. P. (2012). Special report from the 2011 International Diabetes Federation. Cardiovascular Journal of Africa, 23(1), 51-53.
King, N. (2004). Using templates in the thematic analysis of text. In C. Cassell & G. Symon (Eds.), Essential Guide to Qualitative Methods in Organizational Research. Sage.
Krone, N., Högler, W. & Barrett, T. G. (2009). Thoughts on paediatric diabetes care in the UK. The British Journal of Diabetes & Vascular Disease, 9(6), 259–267. https://doi.org/10.1177/1474651409350950
Landers, S. E., Friedrich, E., & Miller, V. (2015). Self-efficacy mediates the associations of parental coercion and autonomy support to adherence in adolescents with type 1 diabetes. Journal of Adolescent Health, 52(2), 85-86. https://doi.org/10.1016/j.jadohealth.2014.10.170
Lange, K., Jackson, C., & Deeb, L. (2009). Diabetes care in schools - the disturbing facts. Paediatric Diabetes, 10, 28-36. https://doi.org/10.1111/j.1399-5448.2009.00613.x
Lawrence, S. E., Cummings, E. A., Pacaud, D., Lynk, A., Metzger, D. L. (2015). Managing type 1 diabetes in school: Recommendations for policy and practice. Paediatr Child Health, 20(1), 35-44. https://doi.org/10.1093/pch/20.1.35
Lewis, D. W., Powers, P. A., Goodenough, M. F., & Poth, M. A. (2003). Inadequacy of in-school support for diabetic children. Diabetes Technology & Therapeutics, 5(1), 45-51. https://doi.org/10.1089/152091503763816463
Macartney, B. (2012). Protecting the rights of disabled learners and their families to quality, inclusive early childhood education. Children’s Magazine, 63-66.
MacMillan, F., Kirk, A., Mutrie, N., Moola, F., & Robertson, K. (2014). Supporting participation in physical education at school in youth with type 1 diabetes. European Physical Education Review, 21(1), 3–30. https://doi.org/10.1177/1356336x14534367
Marshall, M. (2017). Supporting young children with type 1 diabetes in primary schools in the north of England. Journal of Diabetes Nursing, 21(6), 217-222.
Marshall, M., Gidman, W., & Callery, P. (2013). Supporting the care of children with diabetes in school: A qualitative study of nurses in the UK. Diabetic Medicine, 30(7), 871-877. https://doi.org/10.1111/dme.12154
Marx, T. A., Hart, J. L., Nelson, L., Love, J., Baxter, C. M., Gartin, B., & Schaefer Whitby, P. J. (2014). Guiding IEP teams on meeting the least restrictive environment mandate. Intervention in School and Clinic, 50(1), 45–50. https://doi.org/10.1177/1053451214532345
Maxwell, J. A. (2005). Qualitative research design. Sage.
Melton, D., & Henderson, J. (2007). Children with diabetes: Satisfaction with school support, illness perceptions and HbA1c levels. Journal of Developmental and Physical Disabilities, 20, 101-114. https://doi.org/10.1007/s10882-007-9082-4
Miller, C. (2019). School nurse numbers drop by 30% since 2010, says RCN. Nursing Children and Young People, 31(5), 6-6. https://doi.org/10.7748/ncyp.31.5.6. s2
National Health Service (NHS). (2017). A London guide for teachers and parents of children and young people with diabetes: pre-school, early years, primary and secondary schools. https://www.london.gov.uk/what-we-do/health/healthy-schools-london/awards/sites/default/files/2CYP%20diabetes%20guide_proofed.pdf
Northern Ireland Executive. (1995). Disability discrimination act. Retrieved November 28, 2021 from https://www.legislation.gov.uk/ukpga/1995/50/contents
Northern Ireland Executive. (2005). The special educational needs and disability (Northern Ireland) order. Retrieved November 28, 2021 from https://www.legislation.gov.uk/nisi/2005/1117/contents
Nowell, L. S., Norris, J. M., White, D. E., & Moules, N. J. (2017). Thematic analysis: Striving to meet the trustworthiness criteria. International Journal of Qualitative Methods, 16(1), 1–13. https://doi.org/10.1177/1609406917733847
Papatheodorou, K., Banach, M., Bekiari, E., Rizzo, M., & Edmonds, M. (2017). Complications of diabetes 2017. Journal of Diabetes Research, 2018. https://doi.org/10.1155/2018/3086167
Scottish Government. (1978). National Health Service (NHS) Scotland act. Retrieved November 28, 2021 from https://www.legislation.gov.uk/ukpga/1978/29/contents
Scottish Government. (1991). Functions of health boards (Scotland) order. Retrieved November 28, 2021 from https://www.legislation.gov.uk/uksi/1991/570/contents/made
Scottish Government. (2000). The standards in Scotland’s schools (Scotland) act 2000. Retrieved November 28, 2021 from https://www.legislation.gov.uk/asp/2000/6/contents
Scottish Government. (2003). Education (disability strategies and pupils’ educational records (Scotland) act. Retrieved November 28, 2021 from https://www.legislation.gov.uk/asp/2002/12/contents
Scottish Government. (2004). The education (additional support for learning) (Scotland) act. Online at https://www.legislation.gov.uk/asp/2004/4/contents
Scottish Government. (2006). Getting it right for every child (GIRFEC). Retrieved November 28, 2021 from https://www.gov.scot/policies/girfec/
Scottish Government. (2009). Curriculum for excellence: Health and wellbeing: Experiences and outcomes. Retrieved November 28, 2021 from https://education.gov.scot/Documents/health-and-wellbeing-eo.pdf
Scottish Government. (2014). The Children and young people (Scotland) act. Retrieved November 28, 2021 from https://www.legislation.gov.uk/asp/2014/8/contents/enacted
Snyder, H. (2019). Literature review as a research methodology: An overview and guidelines. Journal of Business Research, 104, 333-339. https://doi.org/10.1016/j.jbusres.2019.07.039
Telford, F. A. (2017). Childhood diabetes. InnovAiT, 10(12), 713–720. https://doi.org/10.1177/1755738017731461
The Diabetes Control and Complications Trial Research Group (DCCT). (1993). The effect of intensive treatment of diabetes on the development and progression of long-term complications in insulin dependent diabetes mellitus. New England Journal of Medicine. 329(14), 977–986. https://doi.org/10.1056/NEJM199309303291401
The United Nations Educational, Scientific and Cultural Organization (UNESCO). (1994). The Salamanca statement and framework for action on special education needs, Salamanca: United Nations Educational, Scientific and Cultural Organization. http://www.unesco.org/education/pdf/SALAMA_E.PDF
The United Nations Educational, Scientific and Cultural Organization (UNESCO). (2017). A guide for ensuring inclusion and equity in education. Paris. https://unesdoc.unesco.org/ark:/48223/pf0000248254
The Welsh Government. (2010). Access to education and support for children and young people with medical needs. https://gov.wales/sites/default/files/publications/2018-12/supporting-learners-with-healthcare-needs.pdf
Torgerson, C., & Light, K. (2012). Systematic reviews. In J. Arthur, M. Waring, R. Coe & L. Hedges, (Eds), Research Methods and Methodologies in Education. Sage.
UK Government. (2022). Children with special educational needs and disabilities (SEND). https://www.gov.uk/children-with-special-educational-needs/extra-SEN-help
UK Government. (1989). Children’s act. https://www.legislation.gov.uk/ukpga/1989/41/contents
UK Government. (2002). The education act. https://www.legislation.gov.uk/ukpga/2002/32/contents
UK Government. (2004). Children’s act. https://www.legislation.gov.uk/ukpga/2004/31/contents
UK Government. (2006). NHS Act. https://www.legislation.gov.uk/ukpga/2006/41/contents
UK Government. (2010). The equality act. https://www.legislation.gov.uk/ukpga/2010/15/contents
UK Government. (2014). Child and families act. https://www.legislation.gov.uk/ukpga/2014/6/contents/enacted
United Nations. (2006). Convention on the rights of persons with disabilities. https://www.un.org/disabilities/documents/convention/convoptprot-e.pdf
United Nations Children’s Fund. (1989). UN convention on the rights of the child. Geneva: Office of the High Commissioner for Human Rights. https://www.ohchr.org/en/instruments-mechanisms/instruments/convention-rights-child
Van Der Knaap, L. M., Leeuw, F., Bogaerts, S., & Niissen, L. (2008). Combining Campbell standard and the realist evaluation approach: The best of two worlds? American Journal of Evaluation, 29(1), 48–57. https://doi.org/10.1177/1098214007313024
Wagner, J., & James, A. (2006). A pilot study of school counsellor’s preparedness to serve students with diabetes: Relationship to self-reported diabetes training. Journal of School Health, 76(7), 387-392). https://doi.org/10.1111/j.1746-1561.2006.00130.x
Welsh Government. (2021). The additional learning needs code for Wales 2021. https://www.gov.wales/additional-learning-needs-code