Involving young people in sexual health research and service improvement: conceptual analysis of patient and public involvement (PPI) in three projects

Lewis, R. , Boydell, N. , Blake, C. , Clarke, Z., Kernaghan, K. and McMellon, C. (2023) Involving young people in sexual health research and service improvement: conceptual analysis of patient and public involvement (PPI) in three projects. BMJ Sexual and Reproductive Health, (doi: 10.1136/bmjsrh-2022-201611) (PMID:36307186) (Early Online Publication)

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Abstract

Background: Although increasingly recognised as valuable within sexual and reproductive health (SRH) research and service improvement, examples of patient and public involvement (PPI) are underdocumented, including specific issues relating to young people’s involvement. This article aims to contribute to greater transparency about the practical, methodological and ethical considerations of SRH-related PPI with young people, and to offer recommendations for their meaningful involvement. Methods: Guided by a conceptual tool for evaluating youth participation (the ‘7P’ framework), we analysed learning from PPI within three projects (two academic studies and one service improvement project) that worked with young people to shape sexual health research and practice in Scotland. Analysis: Cross-project analysis of seven interconnected domains (purpose, positioning, perspectives, power relations, protection, place and process) generated productive dialogue about the nuances of meaningfully involving young people in shaping SRH research and services. Key learning includes the importance of: young people’s early involvement in agenda-setting for SRH improvement; developing trusting partnerships that can support involvement of diverse groups of young people; creating multiple ways for young people to contribute, including those that do not rely on direct conversation; and formative evaluation of young people’s experiences of involvement. Conclusions: Mainstreaming young people’s meaningful involvement in shaping SRH research and services requires systems-level change. Resources are required to support SRH researchers and practitioners to share learning and build sustainable multi-sector partnerships, which in turn can increase opportunities for young people from diverse groups to engage with SRH-related PPI activities.

Item Type:Articles
Additional Information:Funding RL, CB and CM are supported by the United Kingdom Medical Research Council [grant codes MC_UU_12017/11, MC_UU_00022/1, MC_UU_00022/3], and the Scottish Government Chief Scientist Office [grant codes SPHSU11, SPHSU16, SPHSU18]. RL and CM are also supported by the TRIUMPH Network (http://triumph.sphsu.gla.ac.uk) which is funded by the Cross-Disciplinary Mental Health Network Plus initiative supported by UKRI under grant ES/S004351/1. NB is supported by the Health Foundation’s grant to the University of Cambridge for The Healthcare Improvement Studies Institute. The CONUNDRUM project was jointly funded by NHS Greater Glasgow and Clyde, NHS Lanarkshire and NHS Lothian, in partnership with the Scottish Government. The Communicating Sexual Consent study was jointly funded by NHS Greater Glasgow and Clyde, NHS Lanarkshire and NHS Lothian. Improving Care-Experienced Young People’s Access to Sexual and Reproductive Health (SRH) Services in Edinburgh was funded by Edinburgh FP Trust and NHS Lothian.
Status:Early Online Publication
Refereed:Yes
Glasgow Author(s) Enlighten ID:McMellon, Dr Christina and Lewis, Dr Ruth and Blake, Ms Carolyn and Boydell, Dr Nicola
Authors: Lewis, R., Boydell, N., Blake, C., Clarke, Z., Kernaghan, K., and McMellon, C.
College/School:College of Medical Veterinary and Life Sciences > School of Health & Wellbeing > MRC/CSO SPHSU
Journal Name:BMJ Sexual and Reproductive Health
Publisher:BMJ Publishing Group
ISSN:2515-1991
ISSN (Online):2515-2009
Published Online:28 October 2022
Copyright Holders:Copyright © Author(s) (or their employer(s)) 2022
First Published:First published in BMJ Sexual and Reproductive Health 2022
Publisher Policy:Reproduced under a Creative Commons License

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Project CodeAward NoProject NamePrincipal InvestigatorFunder's NameFunder RefLead Dept
727631Social Relationships & Health ImprovementLisa McDaidMedical Research Council (MRC)MC_UU_12017/11HW - MRC/CSO Social and Public Health Sciences Unit
3048231Complexity in healthSharon SimpsonMedical Research Council (MRC)MC_UU_00022/1HW - MRC/CSO Social and Public Health Sciences Unit
3048231Relationships and healthKirstin MitchellMedical Research Council (MRC)MC_UU_00022/3HW - MRC/CSO Social and Public Health Sciences Unit
727631Social Relationships & Health ImprovementLisa McDaidOffice of the Chief Scientific Adviser (CSO)SPHSU11HW - MRC/CSO Social and Public Health Sciences Unit
3048231Complexity in healthSharon SimpsonOffice of the Chief Scientific Adviser (CSO)SPHSU16HW - MRC/CSO Social and Public Health Sciences Unit
3048231Relationships and healthKirstin MitchellOffice of the Chief Scientific Adviser (CSO)SPHSU18HW - MRC/CSO Social and Public Health Sciences Unit