What is important in supporting self-management in community stroke rehabilitation? A Q methodology study

Duncan Millar, J. , Mason, H. and Kidd, L. (2022) What is important in supporting self-management in community stroke rehabilitation? A Q methodology study. Disability and Rehabilitation, (doi: 10.1080/09638288.2022.2087766) (PMID:35757835) (Early Online Publication)

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Purpose: Supported self-management (SSM) is an important part of adapting to life after stroke however it is a complex concept. It is unclear what SSM in stroke consists of or how stroke survivors, families, and clinicians can most effectively work together to support person-centred self-management. In this study, we aimed to explore what was most important in making SSM work in community stroke rehabilitation. Methods: We conducted a Q-methodology study with stroke survivors (n = 20), community-based stroke clinicians (n = 20), and team managers (n = 8) across four health boards in Scotland, United Kingdom. Participants ranked 32 statements according to their importance in making SSM work. Factor analysis was used to identify shared viewpoints. Results: We identified four viewpoints: (i) A person-centred approach to build self-confidence and self-worth; (ii) Feeling heard, understood, and supported by everybody; (iii) Preparation of appropriate resources; and (iv) Right thing, right place, right time for the individual. Important across all viewpoints were: a trusting supportive relationship; working in partnership; focusing on meaningful goals; and building self-confidence. Conclusions: Differing views exist on what is most important in SSM. These views could be used to inform quality improvement strategies to support the delivery of SSM that considers the preferences of stroke survivors.

Item Type:Articles
Status:Early Online Publication
Glasgow Author(s) Enlighten ID:Kidd, Dr Lisa and Duncan Millar, Dr Julie
Authors: Duncan Millar, J., Mason, H., and Kidd, L.
College/School:College of Medical Veterinary and Life Sciences > School of Cardiovascular & Metabolic Health
College of Medical Veterinary and Life Sciences > School of Medicine, Dentistry & Nursing > Nursing and Health Care
Journal Name:Disability and Rehabilitation
Publisher:Taylor and Francis
ISSN (Online):1464-5165
Published Online:25 June 2022
Copyright Holders:Copyright © 2022 The Authors
First Published:First published in Disability and Rehabilitation 2022
Publisher Policy:Reproduced under a Creative Commons License

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Project CodeAward NoProject NamePrincipal InvestigatorFunder's NameFunder RefLead Dept
303248Improving the implementation of supported stroke self-management: what does it look like and what makes it `work' in different contextsLisa KiddStroke Association (STROKEAS)SA PG 18\100067Med - Nursing & Healthcare