Investigating Daily Practices of Self-care to Inform the Design of Supportive Health Technologies for Living and Ageing Well with HIV

Claisse, C., Kasadha, B., Stumpf, S. and Durrant, A. C. (2022) Investigating Daily Practices of Self-care to Inform the Design of Supportive Health Technologies for Living and Ageing Well with HIV. In: CHI '22: CHI Conference on Human Factors in Computing Systems, New Orleans, LA, USA, 29 Apr - 05 May 2022, p. 524. ISBN 9781450391573 (doi: 10.1145/3491102.3501970)

Abstract

We report on a Diary Study investigating daily practices of Self-care by seven UK adults living with Human Immunodeficiency Virus (HIV), to understand their routines, experiences, needs and concerns, informing Self-care technology design to support living well. We advance a developing HCI literature evidencing how digital tools for self-managing health do not meet the complex needs of those living with long-term conditions, especially those from marginalised communities. Our evaluation of using a Self-care Diary as Design Probe responds to calls to study Self-care practices so that future digital health tools are better grounded in lived experiences of managing multi-morbidity. We contribute to HCI discourses including Personal Health Informatics, Lived Informatics and Reflection by illuminating psychosocial challenges for practicing and self-reporting on Self-care. We offer design implications from a Critical Digital Health perspective, addressing barriers to technology use related to trust, privacy, and representation, gaining new significance during the COVID-19 pandemic.

• Item Type: Conference Proceedings
• Status: Published
• Refereed: Yes
• Glasgow Author(s) Enlighten ID: Stumpf, Dr Simone
• Authors: Claisse, C., Kasadha, B., Stumpf, S., and Durrant, A. C.
• College/School: College of Science and Engineering > School of Computing Science
• Journal Name: CHI Conference on Human Factors in Computing Systems
• Publisher: ACM
• ISBN: 9781450391573