Developing a minimum data set for older adult care homes in the UK: exploring the concept and defining early core principles

Burton, J. K. et al. (2022) Developing a minimum data set for older adult care homes in the UK: exploring the concept and defining early core principles. Lancet Healthy Longevity, 3(3), e186-e193. (doi: 10.1016/S2666-7568(22)00010-1) (PMID:35282598) (PMCID:PMC8901193)

Abstract

Reforms to social care in response to the COVID-19 pandemic, in the UK and internationally, place data at the heart of proposed innovations and solutions. The principles are not well established of what constitutes core, or minimum, data to support care home residents. Often, what is included privileges data on resident health over day-to-day care priorities and quality of life. This Personal View argues for evidence-based principles on which to base the development of a UK minimum data set (MDS) for care homes. Co-produced work involving care home staff and older people working with stakeholders is required to define and agree the format, content, structure, and operationalisation of the MDS. Implementation decisions will determine the success of the MDS, affecting aspects including data quality, completeness, and usability. Care home staff who collect the data need to benefit from the MDS and see value in their contribution, and residents must derive benefit from data collection and synthesis.

• Item Type: Articles
• Additional Information: This project is funded by the NIHR Health Service Research and Delivery programme (HS & DR NIHR127234) and supported by the NIHR Applied Research Collaboration East of England.
• Status: Published
• Refereed: Yes
• Glasgow Author(s) Enlighten ID: Burton, Dr Jenni
• Authors: Burton, J. K., Wolters, A. T., Towers, A.-M., Jones, L., Meyer, J., Gordon, A. L., Irvine, L., Hanratty, B., Spilsbury, K., Peryer, G., Rand, S., Killett, A., Akdur, G., Allan, S., Biswas, P., and Goodman, C.
• College/School: College of Medical Veterinary and Life Sciences > School of Cardiovascular & Metabolic Health
• Journal Name: Lancet Healthy Longevity
• Publisher: Lancet Publishing Group
• ISSN: 2666-7568
• ISSN (Online): 2666-7568
• Published Online: 07 March 2022
• Copyright Holders: Copyright © 2022 The Author(s)
• First Published: First published in Lancet Healthy Longevity 3(3): e186-e193
• Publisher Policy: Reproduced under a Creative Commons License

Project Code	Award No	Project Name	Principal Investigator	Funder's Name	Funder Ref	Lead Dept
305130		Developing research resouces and minimum data set for Care Homes' Adoption and use	Jennifer Burton	National Institute for Health Research (NIHR)	DACHA Study C005195	HW - Robertson Centre