'A limpet on a ship': spatio-temporal dynamics of patient and public involvement in research

Papoulias, S. (C.) and Callard, F. (2021) 'A limpet on a ship': spatio-temporal dynamics of patient and public involvement in research. Health Expectations, (doi: 10.1111/hex.13215) (PMID:33745192) (Early Online Publication)

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Abstract

Objective: To understand how current funding expectations that applied health research is undertaken in partnership with research institutions, health service providers and other stakeholders may impact on patient and public involvement (PPI). Background: While there is considerable research on the potential impact of PPI in health research, the processes of embedding PPI in research teams remain understudied. We draw on anthropological research on meetings as sites of production and reproduction of institutional cultures and external contexts to investigate how these functions of meetings may affect the potential contributions of patients, carers and the public in research. Methods: We present an ethnography of meetings that draws from a larger set of case studies of PPI in applied health research settings. The study draws on ethnographic observations, interviews with team members, analysis of documents and a presentation of preliminary findings through which feedback from informants was gathered. Results: We identified four means by which the oversight meetings regulated research and constrained the possibilities for PPI: a logic of ‘deliverables’ and imagined interlocutors, the performance of inclusion, positioning PPI in an ‘elsewhere’ of research, and the use of meetings to embed apprenticeship for junior researchers. Conclusions: PPI is essentially out of sync from the institutional logic of ‘deliverables’ constituting research partnerships. Embedding PPI in research requires challenging this logic.

Item Type:Articles
Additional Information:Funding: National Institute for Health Research. Grant Number: NIHR200152.
Status:Early Online Publication
Refereed:Yes
Glasgow Author(s) Enlighten ID:Callard, Professor Felicity
Authors: Papoulias, S. (C.), and Callard, F.
College/School:College of Science and Engineering > School of Geographical and Earth Sciences > Geography
Journal Name:Health Expectations
Publisher:Wiley
ISSN:1369-6513
ISSN (Online):1369-7625
Published Online:21 March 2021
Copyright Holders:Copyright © 2021 The Authors
First Published:First published in Health Expectations 2021
Publisher Policy:Reproduced under a Creative Commons License

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