Kourime, M. and Ahmed, S. F. (2018) Virtual networks for exchanging information and biomaterials: future directions. Sexual Development, 12(1-3), pp. 140-144. (doi: 10.1159/000486872) (PMID:29408815)
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Abstract
Clinical and research networks for rare conditions are increasingly common nowadays. Given the rarity of many such conditions, there is a need to cover more conditions, yet there is also a need to sustain and improve the quality and effectiveness of existing networks. This review will discuss the qualities that are required by a virtual network using some international clinical and research networks that are currently active in the field of rare endocrine conditions affecting sex and adrenal development as exemplars.
| Item Type: | Articles |
|---|---|
| Additional Information: | The I-DSD Registry is supported by a Medical Research Council partnership award G1100236 (S.F.A.) and was initially developed under a project grant from the EUFP7 (201444) and a project grant from the Research Unit of the European Society for Pediatric Endocrinology (ESPE). The I-CAH Registry was supported by EUFP7 (281654) and an unrestricted education grant from Diurnal. M.K. was supported by an ESPE Clinical Fellowship. The EuRRECa consortium is supported by EU CHAFEA (777215). |
| Status: | Published |
| Refereed: | Yes |
| Glasgow Author(s) Enlighten ID: | Kourime, Ms Mariam and Ahmed, Professor Syed Faisal |
| Authors: | Kourime, M., and Ahmed, S. F. |
| College/School: | College of Medical Veterinary and Life Sciences > School of Medicine, Dentistry & Nursing |
| Journal Name: | Sexual Development |
| Publisher: | Karger |
| ISSN: | 1661-5425 |
| ISSN (Online): | 1661-5433 |
| Published Online: | 07 February 2018 |
| Copyright Holders: | Copyright © 2018 S. Karger AG, Basel |
| First Published: | First published in Sexual Development 12(1-3):140-144 |
| Publisher Policy: | Reproduced in accordance with the copyright policy of the publisher |
University Staff: Request a correction | Enlighten Editors: Update this record
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