Mind the gap: patients' experiences and perceptions of goal setting in palliative care

Boa, S., Duncan, E., Haraldsdottir, E. and Wyke, S. (2019) Mind the gap: patients' experiences and perceptions of goal setting in palliative care. Progress in Palliative Care, 27(6), pp. 291-300. (doi: 10.1080/09699260.2019.1672131)

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Background: Palliative care aims to support people to live actively until death. A rehabilitative approach which includes goal setting could be an important way of achieving this. Goal setting is well established in best practice guidelines for palliative care. However little is known about how the process of goal setting actually happens in practice, especially from patients’ points of view. We aimed to investigate patients’ expectations, experience and perceptions of goal setting in one hospice. Methods: We conducted 15 semi-structured interviews with a sample of patients who had been admitted to a Scottish hospice for symptom control. Interviews were digitally recorded, transcribed verbatim and analysed using Framework Analysis. Results: Participants understood and valued goal setting but did not always share their goals with hospice staff. These were often participants’ own personal activity-based goals that they worked on in parallel, but not always in partnership with hospice professionals. Participants were able to adapt their goals as their situation changed. Conclusions: Our findings revealed a gap between the goals that participants identified and worked towards compared with those that participants perceived the professionals focussed on. As a result, opportunities were missed for patients and professionals to work together to achieve goals.

Item Type:Articles
Glasgow Author(s) Enlighten ID:Wyke, Professor Sally and Boa, Dr Sally
Authors: Boa, S., Duncan, E., Haraldsdottir, E., and Wyke, S.
College/School:College of Medical Veterinary and Life Sciences > School of Health & Wellbeing > Social Scientists working in Health and Wellbeing
College of Medical Veterinary and Life Sciences > School of Medicine, Dentistry & Nursing
Journal Name:Progress in Palliative Care
Publisher:Maney Publishing
ISSN (Online):1743-291X
Published Online:13 October 2019
Copyright Holders:Copyright © 2019 Informa UK Limited, trading as Taylor and Francis Group
First Published:First published in Progress in Palliative Care 27(6):291-300
Publisher Policy:Reproduced in accordance with the publisher copyright policy

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