The prevalence and general health status of people with intellectual disabilities and autism co-occurring together – a total population study

Dunn, K. D., Rydzewska, E. , Macintyre, C., Rintoul, J. and Cooper, S.-A. (2019) The prevalence and general health status of people with intellectual disabilities and autism co-occurring together – a total population study. Journal of Intellectual Disability Research, 63(4), pp. 277-285. (doi: 10.1111/jir.12573) (PMID:30488508)

Abstract

Background: Little is known about the population prevalence of co-occurring intellectual disabilities and autism, and its impact on general health status. This study aimed to investigate this, in comparison with the general population. Method: Whole country data from Scotland's Census, 2011 were analysed. Descriptive statistics were generated, 2 tests undertaken, and logistic regressions undertaken both with the whole general population data, adjusted for age and gender, and within the population with co-occurring intellectual disabilities and autism. Results: 5,709/5,295,403 (1.08/1,000) people had co-occurring intellectual disabilities and autism; 2.58/1,000 children/young people and 0.74/1,000 adults. The peak reported prevalence was at age 10 years (3.78/1,000). 66.0% were male. Their general health status was substantially poorer than for the rest of the population, more so for children/young people, and they had more limitations in their day-to-day activities. Co-occurring intellectual disabilities and autism had odds ratio=48.8 (45.0-53.0) in statistically predicting poor health. Conclusion: This is the first study to report the population prevalence of co-existing intellectual disabilities and autism, and the substantial influence this double-disadvantage has on general health status, apparent across the entire life-course. This highlights a group in need of wider recognition for whom resources should be focused on and planned for, informed by evidence. Staff in services for people with either of these conditions need to be trained, equipped, resourced and prepared to address the challenge of working for people with this duality. This is essential, to address these substantial health inequalities.

• Item Type: Articles
• Status: Published
• Refereed: Yes
• Glasgow Author(s) Enlighten ID: Rydzewska, Dr Ewelina and Dunn, Mrs Kirsty and Cooper, Professor Sally-Ann
• Authors: Dunn, K. D., Rydzewska, E., Macintyre, C., Rintoul, J., and Cooper, S.-A.
• College/School: College of Medical Veterinary and Life Sciences > School of Health & Wellbeing > Mental Health and Wellbeing
• Journal Name: Journal of Intellectual Disability Research
• Publisher: Wiley
• ISSN: 0964-2633
• ISSN (Online): 1365-2788
• Published Online: 28 November 2018
• Copyright Holders: Copyright © 2018 MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and John Wiley and Sons Ltd
• First Published: First published in Journal of Intellectual Disability Research 63(4): 277-285
• Publisher Policy: Reproduced in accordance with the publisher copyright policy