Nashef, L. and Leach, J. P. (2017) SUDEP, the aftermath: supporting the bereaved. Practical Neurology, 17(6), pp. 489-492. (doi: 10.1136/practneurol-2017-001729) (PMID:28972036)
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Abstract
Sudden unexpected death in epilepsy is a recurring calamity, yet there is little evidence to guide standards of care for supporting the bereaved. Grief in bereavement includes loss, feelings of guilt, anger and blame. There is also the shock and trauma of the sudden event. How can this be alleviated? This paper focuses on guiding the physician to support the bereaved, while recognising the limited evidence and the varying circumstances that may not always facilitate this. We propose a pathway of care and mode of communication with the deceased's family, with whom contact is currently limited. We suggest timely contact by telephone or in person, followed by ongoing support and referral to voluntary organisations and specialist services, as needed. Clarification and discussion may mitigate inappropriate feelings of guilt and blame, and may help the family with their sudden and unexpected loss.
| Item Type: | Articles |
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| Keywords: | Aftermath, bereavement, epilepsy, SUDEP. |
| Status: | Published |
| Refereed: | Yes |
| Glasgow Author(s) Enlighten ID: | Leach, Dr John Paul |
| Authors: | Nashef, L., and Leach, J. P. |
| College/School: | College of Medical Veterinary and Life Sciences > School of Medicine, Dentistry & Nursing |
| Journal Name: | Practical Neurology |
| Publisher: | BMJ Publishing Group |
| ISSN: | 1474-7758 |
| ISSN (Online): | 1474-7766 |
| Published Online: | 28 September 2017 |
| Copyright Holders: | Copyright © 2017 The Authors |
| First Published: | First published in Practical Neurology 17(6):489-492 |
| Publisher Policy: | Reproduced in accordance with the publisher copyright policy |
University Staff: Request a correction | Enlighten Editors: Update this record
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