The experience of facilitators and participants of long term condition self-management group programmes: a qualitative synthesis

Hughes, S., Lewis, S., Willis, K., Rogers, A., Wyke, S. and Smith, L. (2017) The experience of facilitators and participants of long term condition self-management group programmes: a qualitative synthesis. Patient Education and Counseling, 100(12), pp. 2244-2254. (doi: 10.1016/j.pec.2017.06.035) (PMID:28711415)

Abstract

Objective: Our aim was to systematically review the qualitative literature about the experiences of both facilitators and participants in a range of group-based programmes to support the self-management of long-term conditions. Methods: We searched 7 databases using the terms ‘self-management’, ‘group’ and ‘qualitative’. Full text articles meeting the inclusion criteria were retrieved for review. A thematic synthesis approach was used to analyse the studies. Results: 2126 articles were identified and 24 were included for review. Group participants valued being with similar others and perceived peer support benefits. Facilitators (HCP and lay) had limited group specific training, were uncertain of purpose and prioritised education and medical conformity over supportive group processes and the promotion of self-management agency and engagement. Overall, studies prioritised positive descriptions. Conclusion: Group programmes’ medical self-management focus may reduce their ability to contribute to patient-valued outcomes. Further research is needed to explore this disconnect. Practice implications: This review supports broadening the scope of group-based programmes to foreground shared learning, social support and development of agency. It is of relevance to developers and facilitators of group self-management programmes and their ability to address the burden of long-term conditions.

• Item Type: Articles
• Status: Published
• Refereed: Yes
• Glasgow Author(s) Enlighten ID: Wyke, Professor Sally
• Authors: Hughes, S., Lewis, S., Willis, K., Rogers, A., Wyke, S., and Smith, L.
• College/School: College of Medical Veterinary and Life Sciences > School of Health & Wellbeing > Social Scientists working in Health and Wellbeing
• Journal Name: Patient Education and Counseling
• Publisher: Elsevier
• ISSN: 0738-3991
• ISSN (Online): 1873-5134
• Published Online: 01 July 2017
• Copyright Holders: Copyright © 2017 Elsevier B.V.
• First Published: First published in Patient Education and Counseling 100(12): 2244-2254
• Publisher Policy: Reproduced in accordance with the publisher copyright policy