Understandings of participation in behavioural research: a qualitative study of gay and bisexual men in Scotland

Boydell, N. , Fergie, G. M. , McDaid, L. M. and Hilton, S. (2015) Understandings of participation in behavioural research: a qualitative study of gay and bisexual men in Scotland. PLoS ONE, 10(8), e0135001. (doi: 10.1371/journal.pone.0135001) (PMID:26252480) (PMCID:PMC4529083)

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An array of empirical research has emerged related to public participation in health research. To date, few studies have explored the particular perspectives of gay and bisexual men taking part in behavioural surveillance research, which includes the donation of saliva swabs to investigate HIV prevalence and rates of undiagnosed HIV. Semi-structured interviews were conducted with twenty-nine gay and bisexual men in Scotland who had participated in a bar-based survey. Thematic analysis of men’s accounts of their motives for participation and their perceptions of not receiving individual feedback on HIV status suggested a shared understanding of participation in research as a means of contributing to ‘community’ efforts to prevent the spread of HIV. Most men expressed sophisticated understandings of the purpose of behavioural research and distinguished between this and individual diagnostic testing. Despite calls for feedback on HIV results broadly, for these men feedback on HIV status was not deemed crucial.

Item Type:Articles
Glasgow Author(s) Enlighten ID:McDaid, Professor Lisa and Fergie, Dr Gillian and Hilton, Professor Shona and Boydell, Dr Nicola
Authors: Boydell, N., Fergie, G. M., McDaid, L. M., and Hilton, S.
College/School:College of Medical Veterinary and Life Sciences > School of Health & Wellbeing > MRC/CSO SPHSU
Journal Name:PLoS ONE
Publisher:Public Library of Science
ISSN (Online):1932-6203
Copyright Holders:Copyright © 2015 The Authors
First Published:First published in PLoS ONE 10(8):e0135001
Publisher Policy:Reproduced under a Creative Commons License

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Project CodeAward NoProject NamePrincipal InvestigatorFunder's NameFunder RefLead Dept
656571Sexual Health and Families ProgrammeLisa McdaidMedical Research Council (MRC)MC_UU_12017/2IHW - MRC/CSO SPHU
656611Understanding and Use of Public Health ResearchShona HiltonMedical Research Council (MRC)MC_UU_12017/6IHW - MRC/CSO SPHU
727631SPHSU Core Renewal: Relationships & Health Improvement Research ProgrammeLisa McDaidMedical Research Council (MRC)MC_UU_12017/11IHW - MRC/CSO SPHU
727671SPHSU Core Renewal: Informing Healthy Public Policy Research ProgrammePeter CraigMedical Research Council (MRC)MC_UU_12017/15IHW - MRC/CSO SPHU