Launching the international society of cancer and intellectual & developmental disabilities (ISCIDD)

Tuffrey-Wijne, I., Satge, D., Azema, B., Dubois, J.-B., Willis, D., Santen, G., Parish, S. and Van Schrojenstein Latman-de Valk, H. (2014) Launching the international society of cancer and intellectual & developmental disabilities (ISCIDD). In: Fourth International IASSIDD Europe Regional Congress, Vienna, Austria, 14-17 Jul 2014, p. 391. (doi: 10.1111/jar.12096)

Abstract

Epidemiological data on cancer incidence and mortality suggest that malignant tumors are as frequent in people with intellectual disabilities (ID) as they are in the general population, but with a different distribution. People with ID face many inequalities in cancer screening, diagnosis, treatment, care and support. The aim of our initiative is to understand and address these inequalities. Methods: International experts including physicians, nurses, social workers, scientists, biologists,psychologists,psychiatrists, people with ID and carers gathered in Montpellier (February 2014) at the first international symposium of its kind. Results: There are important developments, but significant gaps in knowledge and service provision remain. The symposium delegates founded the International Society on Cancer and Intellectual & Developmental Disabilities (ISCIDD), and agreed to the Montpellier Declaration, which states that ‘People with intellectual disabilities should have equal access to health service provision in cancer: preventative, curative and palliative treatment and care, in line with those available to the general population. ISCIDD aims to understand and address the specific features of cancer and ID, through fundamental and applied research, collaboration and sharing of expertise’. Conclusion: Sharing expertise with a wide range of disciplines is important in order to make progress in this field.

• Item Type: Conference Proceedings
• Status: Published
• Refereed: Yes
• Glasgow Author(s) Enlighten ID: Willis, Dr Diane
• Authors: Tuffrey-Wijne, I., Satge, D., Azema, B., Dubois, J.-B., Willis, D., Santen, G., Parish, S., and Van Schrojenstein Latman-de Valk, H.
• Subjects: R Medicine > RT Nursing; R Medicine > RZ Other systems of medicine
• College/School: College of Medical Veterinary and Life Sciences > School of Medicine, Dentistry & Nursing > Nursing and Health Care