Conducting randomised controlled trials: Finding better ways to explain research to people with anti-social personality disorder who have low literacy levels

Davidson, K.M., Espie, C.J. and Lammie, C. (2011) Conducting randomised controlled trials: Finding better ways to explain research to people with anti-social personality disorder who have low literacy levels. Criminal Behaviour and Mental Health, 21(4), pp. 265-278. (doi: 10.1002/cbm.811)

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Publisher's URL: http://dx.doi.org/10.1002/cbm.811

Abstract

Background The involvement of people with anti-social personality disorder (ASPD) in clinical trials is necessary to developing effective treatment. Low literacy level, however, may be a barrier to their understanding and therefore their engagement in research. Aim Our aim was to find a preferred and most easily understandable way of communicating about research participation with men who have ASPD. Methods Twenty-five men with ASPD who were using mental health services, research experienced and research na+»ve participated in the study. Literacy levels were assessed. A list of research terms was generated, and statements were developed to ascertain if the terms were understood. The research terms were GÇÿrandomisationGÇÖ, GÇÿinformed consentGÇÖ, GÇÿconfidentialityGÇÖ and a research question GÇÿwhy carry out research?GÇÖ The participants ranked their preferred way of explaining these terms and the method of communicating these. Results Those with research experience understood the research terms better. The research na+»ve and the research experienced men differed in literacy level. Those with below average literacy preferred shorter wordings of research terms than those with average literacy and answered fewer questions correctly. The majority stated a preference for discussion with a researcher before agreeing to take part in research. The least preferred communication methods were those that relied on technology. Conclusions Researchers should be able to find and use terms that are readily understood and do so. Low literacy levels impair understanding of research

Item Type:Articles
Status:Published
Refereed:Yes
Glasgow Author(s) Enlighten ID:Lammie, Miss Claire and Davidson, Professor Kate and Espie, Miss Carolyn
Authors: Davidson, K.M., Espie, C.J., and Lammie, C.
College/School:College of Medical Veterinary and Life Sciences > School of Medicine, Dentistry & Nursing
Journal Name:Criminal Behaviour and Mental Health
ISSN:0957-9664
ISSN (Online):1471-2857
Published Online:03 April 2011

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