A qualitative study utilizing interpretative phenomenological analysis to explore disclosure in adolescents with Turner Syndrome

Nisbet, M., O'Connor, R. , Mason, A. and Hunter, E. (2022) A qualitative study utilizing interpretative phenomenological analysis to explore disclosure in adolescents with Turner Syndrome. British Journal of Health Psychology, 27(3), pp. 990-1010. (doi: 10.1111/bjhp.12586) (PMID:35156277)

[img] Text
264591.pdf - Published Version
Available under License Creative Commons Attribution.



Objectives: To explore the experiences of diagnostic disclosure and disclosure to others in adolescents with Turner syndrome (TS) and their parents/guardians. In addition, we sought to examine the impact of TS on girls with TS and their family’s lives. Design: A qualitative method utilizing interpretative phenomenological analysis (IPA) was employed. Methods: Five girls with TS and one parent/guardian of each girl completed dyadic and individual semi-structured interviews. Interviews were audio recorded and analysed verbatim. Data were analysed in accordance with IPA guidelines, with a focus on the dynamic interactions within dyads. Results: Analyses identified three superordinate themes across the 10 participant accounts: communication and support, stigmatization of TS, and psychological consequences. Ten related subthemes are described alongside relevant quotations, highlighting a gradual process of diagnostic disclosure within families and wider health care systems. Both girls and their parents appeared to express a general desire to conceal TS from others, indicating possible TS-related stigma. The results also demonstrate the varying impact TS can have within families. Conclusions: The findings provide insight into the lived experience of receiving a diagnosis of TS and the possible difficulties around disclosure to others. Potential recommendations for clinicians and parents include ensuring direct conversations about infertility occur within treatment and facilitating open, honest communication.

Item Type:Articles
Glasgow Author(s) Enlighten ID:O'Connor, Professor Rory and Mason, Dr Avril and Nisbet, Mhairi
Creator Roles:
Nisbet, M.Data curation, Formal analysis, Investigation, Methodology, Writing – original draft, Writing – review and editing
Mason, A.Conceptualization, Data curation, Supervision, Writing – original draft
O'Connor, R.Methodology, Resources, Supervision, Writing – original draft
Authors: Nisbet, M., O'Connor, R., Mason, A., and Hunter, E.
College/School:College of Medical Veterinary and Life Sciences > School of Health & Wellbeing > Mental Health and Wellbeing
College of Medical Veterinary and Life Sciences > School of Medicine, Dentistry & Nursing
Journal Name:British Journal of Health Psychology
ISSN (Online):2044-8287
Published Online:14 February 2022
Copyright Holders:Copyright © 2022 The Authors
First Published:First published in British Journal of Health Psychology 27(3): 990-1010
Publisher Policy:Reproduced under a Creative Commons License

University Staff: Request a correction | Enlighten Editors: Update this record