Mindfulness-based interventions for people with multiple sclerosis: a systematic review and meta-aggregation of qualitative research studies

Simpson, R., Simpson, S., Wasilewski, M., Mercer, S. and Lawrence, M. (2022) Mindfulness-based interventions for people with multiple sclerosis: a systematic review and meta-aggregation of qualitative research studies. Disability and Rehabilitation, 44(21), pp. 6179-6193. (doi: 10.1080/09638288.2021.1964622) (PMID:34498997)

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Abstract

Purpose: Mindfulness-based interventions (MBIs) are effective treatments for stress, anxiety, and depression in PwMS. However, low adherence and high attrition may limit effectiveness. Qualitative research can provide important insights into MBI acceptability, accessibility, and implementation. This systematic review and meta-aggregation evaluated qualitative research findings on the use of MBIs for PwMS. Methods: Systematic searches were undertaken in six major electronic databases. Studies using qualitative or mixed methods were included. Two reviewers screened, data extracted, and critically appraised studies. Meta-aggregation was performed following the Joanna Briggs Institute approach, extracting findings, developing categories, and synthesizing findings. Results: Six eligible papers, including 136 PwMS were included in meta-aggregation. 136 findings were extracted, grouped into 17 categories, with four synthesized findings: (1) “accessing mindfulness,” (2) “a sense of belonging,” (3) “experiencing mindfulness,” and (4) “making mindfulness more relevant and sustainable for PwMS.” Conclusions: MBIs for PwMS need to take into consideration disability which can limit accessibility. Online MBIs (synchronous and asynchronous) appear acceptable alternatives to traditional face-to-face courses. However, PwMS benefit from shared (mindful) experiencing and highlight MBI instructors as crucial in helping them understand and practice mindfulness. Involving PwMS in design, delivery, and iterative refinement would make MBIs more relevant to those taking part.

Item Type:Articles
Status:Published
Refereed:Yes
Glasgow Author(s) Enlighten ID:Mercer, Professor Stewart and Simpson, Dr Robert and Simpson, Mrs Sharon
Authors: Simpson, R., Simpson, S., Wasilewski, M., Mercer, S., and Lawrence, M.
College/School:College of Medical Veterinary and Life Sciences > School of Health & Wellbeing > General Practice and Primary Care
College of Medical Veterinary and Life Sciences > School of Health & Wellbeing > MRC/CSO SPHSU
Journal Name:Disability and Rehabilitation
Publisher:Taylor and Francis
ISSN:0963-8288
ISSN (Online):1464-5165
Published Online:09 September 2021
Copyright Holders:Copyright © 2021 The Authors
First Published:First published in Disability and Rehabilitation 44(21): 6179-6193
Publisher Policy:Reproduced under a Creative Commons License

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