Community-driven citizen science approach to explore cardiovascular disease risk perception, and develop prevention advocacy strategies in sub-Saharan Africa: a programme protocol

Okop, K. et al. (2021) Community-driven citizen science approach to explore cardiovascular disease risk perception, and develop prevention advocacy strategies in sub-Saharan Africa: a programme protocol. Research Involvement and Engagement, 7, 11. (doi: 10.1186/s40900-020-00246-x) (PMID:33637131) (PMCID:PMC7907793)

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Abstract

Background: In sub-Saharan Africa (SSA), which experiences a disproportionately high cardiovascular disease (CVD) burden, population-based screening and prevention measures are hampered by low levels of knowledge about CVD and associated risk factors, and inaccurate perceptions of severity of risk. Methods: This protocol describes the planned processes for implementing community-driven participatory research, using a citizen science method to explore CVD risk perceptions and to develop community-specific advocacy and prevention strategies in the rural and urban SSA settings. Multi-disciplinary research teams in four selected African countries will engage with and train community members living in rural and urban communities as citizen scientists to facilitate conceptualization, co-designing of research, data gathering, and co-creation of knowledge that can lead to a shared agenda to support collaborative participation in community-engaged science. The emphasis is on robust community engagement, using mobile technology to support data gathering, participatory learning, and co-creation of knowledge and disease prevention advocacy. Discussion: Contextual processes applied and lessons learned in specific settings will support redefining or disassembling boundaries in participatory science to foster effective implementation of sustainable prevention intervention programmes in Low- and Middle-income countries.

Item Type:Articles
Additional Information:Funding for the larger study (CEBHA+) for which this study is part of was obtained from the German Ministry of Education and Research (BMBF) – the funding number is 66.3010.7–002.12.
Keywords:Citizen science, cardiovascular disease, risk, prevention Sub-Saharan Africa.
Status:Published
Refereed:Yes
Glasgow Author(s) Enlighten ID:Bunn, Dr Christopher and Crampin, Professor Mia
Authors: Okop, K., Murphy, K., Lambert, E., Kedir, K., Getachew, H., Howe, R., Niyibizi, J., Ntawuyirushintege, S., Bavuma, C., Rulisa, S., Kasenda, S., Chipeta, E., Bunn, C., Crampin, A. C., Chapotera, G., King, A. C., Banchoff, A., Winter, S. J., and Levit, N. S.
Subjects:H Social Sciences > HT Communities. Classes. Races
R Medicine > RA Public aspects of medicine
College/School:College of Medical Veterinary and Life Sciences > Institute of Health and Wellbeing > Public Health
College of Social Sciences > School of Social and Political Sciences > Sociology Anthropology and Applied Social Sciences
Journal Name:Research Involvement and Engagement
Publisher:BioMed Central
ISSN:2056-7529
ISSN (Online):2056-7529
Copyright Holders:Copyright © 2021 The Authors
First Published:First published in Research Involvement and Engagement 7: 11
Publisher Policy:Reproduced under a Creative Commons License

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