The EuRRECa project as a model for data access and governance policies for rare disease registries that collect clinical outcomes

Ali, S. R. et al. (2020) The EuRRECa project as a model for data access and governance policies for rare disease registries that collect clinical outcomes. International Journal of Environmental Research and Public Health, 17(23), 8743. (doi: 10.3390/ijerph17238743) (PMID:33255540) (PMCID:PMC7727867)

[img] Text
228958.pdf - Published Version
Available under License Creative Commons Attribution.

1MB

Abstract

No abstract available.

Item Type:Articles
Status:Published
Refereed:Yes
Glasgow Author(s) Enlighten ID:Ahmed, Professor Syed Faisal and Bryce, Dr Jillian and Ali, Dr Salma and Smythe, Mr Christopher
Authors: Ali, S. R., Bryce, J., Tan, L. E., Hiort, O., Pereira, A. M., van den Akker, E. L.T., Appelman-Dijkstra, N. M., Bertherat, J., Cools, M., Dekkers, O. M., Kodra, Y., Persani, L., Smyth, A., Smythe, C., Taruscio, D., and Ahmed, S. F.
College/School:College of Medical Veterinary and Life Sciences > School of Medicine, Dentistry & Nursing
Journal Name:International Journal of Environmental Research and Public Health
Publisher:MDPI
ISSN:1660-4601
ISSN (Online):1660-4601
Copyright Holders:Copyright © 2020 The Authors
First Published:First published in International Journal of Environmental Research and Public Health 17(23):8743
Publisher Policy:Reproduced under a Creative Commons licence

University Staff: Request a correction | Enlighten Editors: Update this record