Austin, R. C., Schoonhoven, L., Richardson, A., Kalra, P. R. and May, C. R. (2020) How do SYMPtoms and management tasks in chronic heart failure imPACT a person's life (SYMPACT)? Protocol for a mixed-methods study. ESC Heart Failure, 7(6), pp. 4472-4477. (doi: 10.1002/ehf2.13010) (PMID:32940966) (PMCID:PMC7754908)
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Abstract
Aims: Patients with chronic heart failure (CHF) struggle to follow self-care plans, which may lead to worsening illness and poor quality of life. Burden of treatment (BoT) describes this workload and its impact on patients' lives. Suggesting the balance between a patient's treatment workload and their capability to manage it is crucial. If BoT is reduced, self-care engagement and quality of life may improve. This article describes the SYMPACT study design and methods used to explore how symptoms and management tasks impact CHF patients' lives. Methods and results: We used a sequential exploratory mixed-methods design to investigate the interaction between symptoms and BoT in CHF patients. Conclusions: If symptoms and BoT are intrinsically linked, then the high level of symptoms experienced by CHF patients may lead to increased treatment burden, which likely decreases patients' engagement with self-care plans. SYMPACT may identify modifiable factors to improve CHF patients' experience.
| Item Type: | Articles |
|---|---|
| Additional Information: | This work was completed as a part of a fully funded Clinical Academic Doctoral Fellowship at the University of Southampton, Portsmouth Hospitals University NHS Trust, and the National Institute for Health Research (NIHR) Applied Research Collaboration (ARC) Wessex. This article is independent research funded in part by the NIHR ARC Wessex. |
| Keywords: | Burden of treatment, chronic heart failure, mixed methods, self-care, study design, symptom burden. |
| Status: | Published |
| Refereed: | Yes |
| Glasgow Author(s) Enlighten ID: | Kalra, Professor Paul |
| Authors: | Austin, R. C., Schoonhoven, L., Richardson, A., Kalra, P. R., and May, C. R. |
| College/School: | College of Medical Veterinary and Life Sciences > School of Health & Wellbeing > Robertson Centre |
| Journal Name: | ESC Heart Failure |
| Publisher: | Wiley |
| ISSN: | 2055-5822 |
| ISSN (Online): | 2055-5822 |
| Published Online: | 17 September 2020 |
| Copyright Holders: | Copyright © 2020 The Authors |
| First Published: | First published in ESC Heart Failure 7(6): 4472-4477 |
| Publisher Policy: | Reproduced under a Creative Commons License |
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