Callard, F. and Perego, E. (2021) How and why patients made long Covid. Social Science and Medicine, 268, 113426. (doi: 10.1016/j.socscimed.2020.113426) (PMID:33199035) (PMCID:PMC7539940)
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Abstract
Patients collectively made Long Covid – and cognate term ‘long-haul Covid’ – in the first months of the pandemic. Patients, many with initially ‘mild’ illness, used various kinds of evidence and advocacy to demonstrate a longer, more complex course of illness than laid out in initial reports from Wuhan. Long Covid has a strong claim to be the first illness created through patients finding one another on social media: it moved from patients, through various media, to formal clinical and policy channels in just a few months. This initial mapping of Long Covid – by two patients with this illness – focuses on actors in the UK and USA and demonstrates how patients marshalled epistemic authority. Patient knowledge needs to be incorporated into how COVID-19 is conceptualised, researched, and treated.
Item Type: | Articles |
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Keywords: | Chronic illness, COVID-19, expertise, long-hauler, patient activism, patient groups, SARS-CoV-2, social media. |
Status: | Published |
Refereed: | Yes |
Glasgow Author(s) Enlighten ID: | Callard, Professor Felicity |
Authors: | Callard, F., and Perego, E. |
College/School: | College of Science and Engineering > School of Geographical and Earth Sciences |
Journal Name: | Social Science and Medicine |
Publisher: | Elsevier |
ISSN: | 0277-9536 |
ISSN (Online): | 1873-5347 |
Published Online: | 07 October 2020 |
Copyright Holders: | Copyright © 2020 The Authors |
First Published: | First published in Social Science and Medicine 268: 113426 |
Publisher Policy: | Reproduced under a Creative Commons License |
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