Personalisation and the promise of independent living: where now for cash, care and control for disability organisations across the UK?

Pearson, C. , Brunner, R., Porter, T. and Watson, N. (2020) Personalisation and the promise of independent living: where now for cash, care and control for disability organisations across the UK? Scandinavian Journal of Disability Research, 22(1), pp. 285-295. (doi: 10.16993/sjdr.742)

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Abstract

Personalisation has dominated social care across OECD countries over the past 20 years. UK policy evolved from the efforts of disabled peoples’ organisations (DPOs) to secure the availability of cash payments as part of a wider drive to enable independent living. Implementation of personalisation across the UK has seen significant divergence in how governments have developed their own responses, but in each country the DPOs’ role and impact has shifted from campaigning and promoting the voices of disabled people to a more muted focus on service provision and limited policy engagement. This article draws on a series of interviews with DPOs and leading disabled activists. It highlights concerns raised related to themes around austerity, changing relationships with local government and the role of co-production in developing policy. We conclude the article by discussing the future directions for personalisation and developments in light of the COVID-19 pandemic.

Item Type:Articles
Status:Published
Refereed:Yes
Glasgow Author(s) Enlighten ID:Brunner, Dr Richard and Watson, Professor Nicholas and Pearson, Dr Charlotte
Authors: Pearson, C., Brunner, R., Porter, T., and Watson, N.
College/School:College of Medical Veterinary and Life Sciences > Institute of Health and Wellbeing > General Practice and Primary Care
College of Medical Veterinary and Life Sciences > Institute of Health and Wellbeing > Social Scientists working in Health and Wellbeing
College of Social Sciences > School of Social and Political Sciences > Urban Studies
Journal Name:Scandinavian Journal of Disability Research
Publisher:Stockholm University Press
ISSN:1501-7419
ISSN (Online):1745-3011
Published Online:03 November 2020
Copyright Holders:Copyright © 2020 The Authors
First Published:First published in Scandinavian Journal of Disability Research 22(1): 285-295
Publisher Policy:Reproduced under a Creative Commons License

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