Thomas, M., Coveney, E., Pike, C., Morgan, K. and Noble-Jones, R. (2020) Exploring the impact of lymphoedema on individuals and if lymphatic venous anastomosis surgery effects perceptions on quality of life: A qualitative study. European Journal of Oncology Nursing, 44, 101720. (doi: 10.1016/j.ejon.2019.101720) (PMID:31958675)
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Abstract
Purpose: Lymphoedema is a chronic condition, a cancer consequence and causes physical, psychological, and social implications. A new super-micro surgical treatment Lymphatic Venous Anastomosis (LVA) may improve the symptoms of lymphoedema. This study aims to explore the impact of lymphoedema on individuals and if LVA Surgery changes perceptions on quality of life. Method: Semi-structured interviews were conducted with sixteen individual's pre-LVA surgery and repeated six months later post-LVA with ten of the participants. Transcripts were analysed using thematic analysis. Results: Themes identified pre-LVA included: Impact of Living with Lymphoedema, Being Different, and Future Hopes and Emotions. Participants reported making significant changes to ‘normal' life due to living with lymphoedema. Changes included alteration in shopping, cleaning, hobbies, familial roles, employment and sexual intimacy. The wearing of compression garments engendered feelings of being unattractive. Themes found post-LVA were: I am one of the Lucky Ones and Returning to Former Self. Post-LVA, participants described how life had become more normalised with fear and apprehension of developing cellulitis reduced. Positive changes had enabled usual activities of daily living to recommence. Some participants had decreased pain, aching, heaviness, stiffness and were wearing their compression garments less. Conclusion: The findings suggest that the real impact of living with lymphoedema is much more challenging than previously identified. The findings suggest that LVA can give a future of greater choice for some of its recipients, but further research should explore longer-term benefits. LVA could offer hope to some people with lymphoedema, but a realistic expectation is essential.
| Item Type: | Articles |
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| Additional Information: | Tenovus Cancer Care provided a research grant to fund this study. |
| Status: | Published |
| Refereed: | Yes |
| Glasgow Author(s) Enlighten ID: | Noble-Jones, Dr Rhian |
| Creator Roles: | |
| Authors: | Thomas, M., Coveney, E., Pike, C., Morgan, K., and Noble-Jones, R. |
| College/School: | College of Medical Veterinary and Life Sciences > School of Medicine, Dentistry & Nursing > Nursing and Health Care |
| Journal Name: | European Journal of Oncology Nursing |
| Publisher: | Elsevier |
| ISSN: | 1462-3889 |
| ISSN (Online): | 1532-2122 |
| Published Online: | 26 December 2019 |
| Copyright Holders: | Copyright © 2020 Crown Copyright |
| First Published: | First published in European Journal of Oncology Nursing 44:101720 |
| Publisher Policy: | Reproduced in accordance with the copyright policy of the publisher |
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