Virtual networks for exchanging information and biomaterials: future directions

Kourime, M. and Ahmed, S. F. (2018) Virtual networks for exchanging information and biomaterials: future directions. Sexual Development, 12(1-3), pp. 140-144. (doi: 10.1159/000486872) (PMID:29408815)

209011.pdf - Accepted Version



Clinical and research networks for rare conditions are increasingly common nowadays. Given the rarity of many such conditions, there is a need to cover more conditions, yet there is also a need to sustain and improve the quality and effectiveness of existing networks. This review will discuss the qualities that are required by a virtual network using some international clinical and research networks that are currently active in the field of rare endocrine conditions affecting sex and adrenal development as exemplars.

Item Type:Articles
Additional Information:The I-DSD Registry is supported by a Medical Research Council partnership award G1100236 (S.F.A.) and was initially developed under a project grant from the EUFP7 (201444) and a project grant from the Research Unit of the European Society for Pediatric Endocrinology (ESPE). The I-CAH Registry was supported by EUFP7 (281654) and an unrestricted education grant from Diurnal. M.K. was supported by an ESPE Clinical Fellowship. The EuRRECa consortium is supported by EU CHAFEA (777215).
Glasgow Author(s) Enlighten ID:Kourime, Ms Mariam and Ahmed, Professor Syed Faisal
Authors: Kourime, M., and Ahmed, S. F.
College/School:College of Medical Veterinary and Life Sciences > School of Medicine, Dentistry & Nursing
Journal Name:Sexual Development
ISSN (Online):1661-5433
Published Online:07 February 2018
Copyright Holders:Copyright © 2018 S. Karger AG, Basel
First Published:First published in Sexual Development 12(1-3):140-144
Publisher Policy:Reproduced in accordance with the copyright policy of the publisher

University Staff: Request a correction | Enlighten Editors: Update this record

Project CodeAward NoProject NamePrincipal InvestigatorFunder's NameFunder RefLead Dept
190419The International DSD Network (I-DSD)Syed Faisal AhmedMedical Research Council (MRC)G1100236/1Med - Child Health
160901European Disorders of Sex DevelopmentRichard SinnottEuropean Commission (EC)201444US - E-Science