Issues in caregiving for older people with intellectual disabilities and their ageing family carers: a review and commentary

Ryan, A., Taggart, L., Truesdale-Kennedy, M. and Slevin, E. (2014) Issues in caregiving for older people with intellectual disabilities and their ageing family carers: a review and commentary. International Journal of Older People Nursing, 9(3), pp. 217-226. (doi: 10.1111/opn.12021) (PMID:23497304)

Full text not currently available from Enlighten.

Abstract

Background: In keeping with worldwide demographic changes and an ageing population, people with intellectual disabilities are living longer and all the evidence suggest that this trend will continue. This ‘new’ population of older people and their carers will pose challenges for health and social care providers. Aim: This paper presents a review of the literature on key issues influencing caregiving for older people with intellectual disabilities and their ageing family carers. Methods: The review was undertaken using a framework adapted from the NHS Centre for Reviews and Dissemination. Papers were identified through the use of databases including CINAHL, Science Direct, PsychoInfo, Blackwell Synergy, the Cochrane Library and MEDLINE. Findings: The key themes which emerged from the literature and which consequently form the basis of this review include: ageing family carers, future planning and support services. In the context of family caregiving, older people with intellectual disabilities represent a unique group insofar as they are unlikely to be married and therefore have no spouse or dependents to care for them in later life. As a result, parents (usually mothers) have to continue caring for their son or daughter with an intellectual disability as they both grow older, often resulting in a mutually dependent relationship. The caregiving situation is further complicated by poor emergency and future planning and by a lack of appropriate services for this group of individuals. Conclusions: In light of the emergence of a ‘new’ population of older people with intellectual disabilities, there is an urgent need to develop services and support structures which will enable these individuals and their ageing carers to x91age in placex92 and when this is no longer possible, to have appropriate alternatives that recognise the duality of their needs as older people and as people with intellectual disabilities.

Item Type:Articles
Additional Information:The authors wish to acknowledge the Dunhill Medical Trust who funded the research from which this review was drawn.
Status:Published
Refereed:Yes
Glasgow Author(s) Enlighten ID:Truesdale, Dr Maria
Authors: Ryan, A., Taggart, L., Truesdale-Kennedy, M., and Slevin, E.
College/School:College of Medical Veterinary and Life Sciences > School of Health & Wellbeing > Mental Health and Wellbeing
Journal Name:International Journal of Older People Nursing
Publisher:Wiley
ISSN:1748-3735
ISSN (Online):1748-3743
Published Online:15 March 2013

University Staff: Request a correction | Enlighten Editors: Update this record