Pilot feasibility study examining a structured self-management diabetes education programme, DESMOND-ID, targeting HbA1c in adults with intellectual disabilities

Taggart, L. et al. (2017) Pilot feasibility study examining a structured self-management diabetes education programme, DESMOND-ID, targeting HbA1c in adults with intellectual disabilities. Diabetic Medicine, 35(1), pp. 137-146. (doi: 10.1111/dme.13539) (PMID:29083501)

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Abstract

Aim: To report on the outcomes of a pilot feasibility study of a structured self‐management diabetes education programme targeting HbA1c. Methods: We conducted a two‐arm, individually randomized, pilot superiority trial for adults with intellectual disability and Type 2 diabetes mellitus. A total of 66 adults with disabilities across the UK met the eligibility criteria. Of these, 39 agreed to participate and were randomly assigned to either the DESMOND‐ID programme (n = 19) or a control group (n = 20). The programme consisted of seven weekly educational sessions. The primary outcome was HbA1c level, and secondary outcomes included BMI, diabetes illness perceptions, severity of diabetes, quality of life, and attendance rates. Results: This study found that the DESMOND‐ID programme was feasible to deliver. With reasonable adjustments, the participants could be recruited successfully, and could provide consent, complete the outcome measures, be randomized to the groups and attend most of the sessions, with minimal loss to follow‐up. The fixed‐effects model, the interaction between occasion (time) and condition, showed statistically significant results (0.05 level) for HbA1c; however, the CI was large. Conclusion: This is the first published study to adapt and pilot a national structured self‐management diabetes education programme for adults with intellectual disability. This study shows it is possible to identify, recruit, consent and randomize adults with intellectual disabilities to an intervention or control group. Internationally, the results of this pilot are promising, demonstrating that a multi‐session education programme is acceptable and feasible to deliver. Its effectiveness should be further tested in an adequately powered trial.

Item Type:Articles
Additional Information:This study was funded by Diabetes UK. It was registered with the International Standard Randomized Control Trial number ISRCTN93185560.
Status:Published
Refereed:Yes
Glasgow Author(s) Enlighten ID:Truesdale, Dr Maria
Authors: Taggart, L., Truesdale, M., Carey, M. E., Martin-Stacey, L., Scott, J., Bunting, B., Coates, V., Brown, M., Karatzias, T., Northway, R., and Clarke, J. M.
College/School:College of Medical Veterinary and Life Sciences > School of Health & Wellbeing > Mental Health and Wellbeing
Journal Name:Diabetic Medicine
Publisher:Wiley
ISSN:0742-3071
ISSN (Online):1464-5491
Published Online:21 November 2017

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