Measuring the success of interventions for caregivers: a focussed systematic review

Drummond, M., Johnston, B. and Quinn, T. J. (2019) Measuring the success of interventions for caregivers: a focussed systematic review. Current Opinion in Supportive and Palliative Care, (doi: 10.1097/SPC.0000000000000461) (Early Online Publication)

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Abstract

Purpose of review: The selection and application of outcome measures are fundamental steps in the research process because they inform decisions around intervention efficacy. We aimed to describe the outcomes used in trials of supportive interventions for adult caregivers of people with three exemplar life-limiting conditions: heart failure, dementia or stroke. Recent findings: We performed a focussed review of 134 published trials that included interventions designed to improve caregivers’ health and wellbeing and/or ability to function in their caring role. We extracted and categorized all caregiver outcomes described in the studies. We identified inconsistency in the outcomes measured; frequent use of bespoke and adapted tools (29% of outcomes were bespoke), and a lack of clarity in outcome priorities (the mean number of outcomes per trial was four [range: 1–11]). Outcome scales that purport to measure the psychological impact of the caring role were the most popular tools in all three caregiver groups. Summary: Outcomes used in trials related to adult caregivers are characterized by inconsistencies in outcome measure selection and assessment. This heterogeneity complicates comparisons of treatments and attempts to pool data.

Item Type:Articles
Status:Early Online Publication
Refereed:Yes
Glasgow Author(s) Enlighten ID:Drummond, Maria and Johnston, Professor Bridget and Quinn, Dr Terry
Authors: Drummond, M., Johnston, B., and Quinn, T. J.
College/School:College of Medical Veterinary and Life Sciences > Institute of Cardiovascular and Medical Sciences
College of Medical Veterinary and Life Sciences > School of Medicine, Dentistry & Nursing > Nursing and Health Care
Journal Name:Current Opinion in Supportive and Palliative Care
Publisher:Lippincott, Williams and Wilkins
ISSN:1751-4258
ISSN (Online):1751-4266
Published Online:13 September 2019
Copyright Holders:Copyright © 2019 The Authors
First Published:First published in Current Opinion in Supportive and Palliative Care 2019
Publisher Policy:Reproduced under a Creative Commons License

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