Ali, S. R., Lucas-Herald, A. , Bryce, J. and Ahmed, S. F. (2019) The role of international databases in understanding the aetiology and consequences of differences/disorders of sex development. International Journal of Molecular Sciences, 20, 4405. (doi: 10.3390/ijms20184405)
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Abstract
The International Disorders of Sex Development (I-DSD) and International Congenital AdrenalHyperplasia registry (I-CAH) Registries were originally developed over 10 years ago and have since supported several strands of research and led to approximately 20 peer-reviewed publications. In addition to acting as an indispensable tool for monitoring clinical and patient-centered outcomes for improving clinical practice, the registries can support a wide nature of primary and secondary research and can also act as a platform for pharmacovigilance, given their ability to collect real world patient data within a secure, ethics approved virtual research environment. The challenge for the future is to ensure that the research community continues to use the registries to improve our understanding of Disorders of Sex Development (DSD).
| Item Type: | Articles |
|---|---|
| Additional Information: | Funding: SRA is supported by an unrestricted education grant from Diurnal and the Gardiner Lectureship at the University of Glasgow. |
| Status: | Published |
| Refereed: | Yes |
| Glasgow Author(s) Enlighten ID: | Bryce, Dr Jillian and Ali, Dr Salma and Ahmed, Professor Syed Faisal and Lucas-Herald, Dr Angela |
| Authors: | Ali, S. R., Lucas-Herald, A., Bryce, J., and Ahmed, S. F. |
| College/School: | College of Medical Veterinary and Life Sciences > School of Medicine, Dentistry & Nursing |
| Journal Name: | International Journal of Molecular Sciences |
| Publisher: | MDPI |
| ISSN: | 1661-6596 |
| ISSN (Online): | 1422-0067 |
| Copyright Holders: | Copyright © 2019 by the authors |
| First Published: | First published in International Journal of Molecular Sciences 20:4405 |
| Publisher Policy: | Reproduced under a Creative Commons license |
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