Our data, our society, our health: a vision for inclusive and transparent health data science in the United Kingdom and beyond

Ford, E. et al. (2019) Our data, our society, our health: a vision for inclusive and transparent health data science in the United Kingdom and beyond. Learning Health Systems, 3(3), e10191. (doi:10.1002/lrh2.10191) (PMID:31317072) (PMCID:PMC6628981)

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Abstract

The last 6 years have seen sustained investment in health data science in the United Kingdom and beyond, which should result in a data science community that is inclusive of all stakeholders, working together to use data to benefit society through the improvement of public health and well‐being. However, opportunities made possible through the innovative use of data are still not being fully realised, resulting in research inefficiencies and avoidable health harms. In this paper, we identify the most important barriers to achieving higher productivity in health data science. We then draw on previous research, domain expertise, and theory to outline how to go about overcoming these barriers, applying our core values of inclusivity and transparency. We believe a step change can be achieved through meaningful stakeholder involvement at every stage of research planning, design, and execution and team‐based data science, as well as harnessing novel and secure data technologies. Applying these values to health data science will safeguard a social licence for health data research and ensure transparent and secure data usage for public benefit.

Item Type:Articles
Status:Published
Refereed:Yes
Glasgow Author(s) Enlighten ID:Katikireddi, Dr Vittal
Authors: Ford, E., Boyd, A., Bowles, J. K.F., Havard, A., Aldridge, R. W., Curcin, V., Greiver, M., Harron, K., Katikireddi, V., Rodgers, S. E., and Sperrin, M.
College/School:College of Medical Veterinary and Life Sciences > Institute of Health and Wellbeing > MRC/CSO SPHSU
Journal Name:Learning Health Systems
Publisher:Wiley
ISSN:2379-6146
ISSN (Online):2379-6146
Published Online:25 March 2019
Copyright Holders:Copyright © 2019 The Authors
First Published:First published in Learning Health Systems 3(3):e10191
Publisher Policy:Reproduced under a Creative Commons License

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Project CodeAward NoProject NamePrincipal InvestigatorFunder's NameFunder RefLead Dept
699162Understanding the impacts of welfare policy on health: A novel data linkage studySrinivasa KatikireddiChief Scientist office (CSO)SCAF/15/02IHW - MRC/CSO SPHU
727651SPHSU Core Renewal: Measuring and Analysing Socioeconomic Inequalities in Health Research ProgrammeAlastair LeylandMedical Research Council (MRC)MC_UU_12017/13IHW - MRC/CSO SPHU
727671SPHSU Core Renewal: Informing Healthy Public Policy Research ProgrammePeter CraigMedical Research Council (MRC)MC_UU_12017/15IHW - MRC/CSO SPHU
SPHSU13
SPHSU15

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