Translation of a community palliative care intervention: experience from West Bengal, India

Vijay, D., Zaman, S. and Clark, D. (2018) Translation of a community palliative care intervention: experience from West Bengal, India. Wellcome Open Research, 3, 66. (doi:10.12688/wellcomeopenres.14599.1) (PMID:30116790) (PMCID:PMC6069742)

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Abstract

Background: The community form of palliative care first constructed in Kerala, India has gained recognition worldwide. Although it is the subject of important claims about its replicability elsewhere, little effort has gone into studying how this might occur. Drawing on translation studies, we attend to under-examined aspects of the transfer of a community palliative care intervention into a new geographic and institutional context. Methods: Over a period of 29 months, we conducted an in-depth case study of Sanjeevani, a community-based palliative care organization in Nadia district, West Bengal (India), that is modelled on the Kerala approach. We draw upon primary (semi-structured interviews and field notes) and secondary data sources. Results: We identify the translator’s symbolic power and how it counteracts the organizational challenges relating to socio-economic conditions and weak histories of civil society organizing. We find that unlike the Kerala form, which is typified by horizontal linkages and consensus-oriented decision-making, the translated organizational form in Nadia is a hybrid of horizontal and vertical solidarities. We show how translation is an ongoing, dynamic process, where community participation is infused with values of occupational prestige and camaraderie and shaped by emergent vertical solidarities among members. Conclusions: Our findings have implications for how we understand the relationship between locations, institutional histories, and healthcare interventions. We contribute to translation studies in healthcare, and particularly to conversations about the transfer or ‘roll out’ of palliative care interventions from one geography to another.

Item Type:Articles
Keywords:Community-based organizations, India, palliative care, translation.
Status:Published
Refereed:Yes
Glasgow Author(s) Enlighten ID:Clark, Professor David and Zaman, Dr Shahaduz
Creator Roles:
Zaman, S.Conceptualization, Investigation, Methodology, Validation, Writing – review and editing
Clark, D.Conceptualization, Funding acquisition, Methodology, Resources, Supervision, Writing – review and editing
Authors: Vijay, D., Zaman, S., and Clark, D.
College/School:College of Social Sciences > School of Interdisciplinary Studies
Journal Name:Wellcome Open Research
Publisher:F1000Research
ISSN:2398-502X
ISSN (Online):2398-502X
Copyright Holders:Copyright © 2018 Vijay D et al.
First Published:First published in Wellcome Open Research 3: 66
Publisher Policy:Reproduced under a Creative Commons License

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Project CodeAward NoProject NamePrincipal InvestigatorFunder's NameFunder RefLead Dept
645152Interventions at the end of life: social, historical and comparative analysis to promote global improvement.David ClarkWellcome Trust (WELLCOTR)103319/Z/13/AIS - INTERDISCIPLINARY STUDIES

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