Early death and causes of death of people with intellectual disabilities: a systematic review

O'Leary, L., Cooper, S.-A. and Hughes-Mccormack, L. (2018) Early death and causes of death of people with intellectual disabilities: a systematic review. Journal of Applied Research in Intellectual Disabilities, 31(3), pp. 325-342. (doi:10.1111/jar.12417) (PMID:28984406)

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Abstract

Background: Death of people with intellectual disabilities is considered to be earlier than for the general population. Methods: Databases were searched for key words on intellectual disabilities and death. Strict inclusion/exclusion criteria were used. Information was extracted from selected papers, tabulated and synthesized. Prospero registration number: CRD42015020161. Results: Of 19,111 retrieved articles, 27 met criteria. Death was earlier by 20 years. It has improved in recent decades; however, the same inequality gap with the general population remains. More severe intellectual disabilities, and/or additional comorbidities rendered it shortest. Standardized mortality rates showed a greater inequality for women than men. Respiratory disease and circulatory diseases (with greater congenital and lesser ischaemic disease compared with the general population) were the main causes of death. Cancer was less common, and cancer profile differed from the general population. Some deaths are potentially avoidable. All research is from high-income countries, and cause of death is surprisingly little investigated. Conclusions: Improved health care, including anticipatory care such as health checks, and initiatives addressing most relevant lifestyle behaviours and health risks are indicated.

Item Type:Articles
Keywords:Education, developmental and educational psychology.
Status:Published
Refereed:Yes
Glasgow Author(s) Enlighten ID:Hughes-Mccormack, Mrs Laura and O'Leary, Dr Lisa and Cooper, Professor Sally-Ann
Authors: O'Leary, L., Cooper, S.-A., and Hughes-Mccormack, L.
College/School:College of Medical Veterinary and Life Sciences > Institute of Health and Wellbeing > Mental Health and Wellbeing
Journal Name:Journal of Applied Research in Intellectual Disabilities
Publisher:Wiley
ISSN:1360-2322
ISSN (Online):1468-3148
Published Online:06 October 2017

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