Running out of time: exploring the concept of waiting for people with motor neurone disease

Ferrie, J. and Wiseman, P. (2018) Running out of time: exploring the concept of waiting for people with motor neurone disease. Time and Society, (doi:10.1177/0961463X16656854) (Early Online Publication)

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Abstract

Waiting is a part of everyday life. It is often characterised by its banality: its quotidian nature. Time spent waiting can be seen as boring, wasted, and at times painful or distressing, or conversely hopeful or full of potential. The experience of Motor Neurone Disease (MND) reveals a population for whom (limited) time has a significant impact on quality of life. This paper will argue that waiting, for people with MND, exemplifies the relationship between time, power and agency. In so doing we can better conceptualise the manifold ways in which time and waiting are experienced through choosing to wait, enforced waiting and waiting when time is known to be ‘running out’. Through a sociological analysis of multiple forms of waiting three key themes emerged that characterised waiting as powerlessness; emotional (as a form of production), and; alternating as an experience between patience and endurance. This paper challenges the passivity, universality and ambivalence ascribed to waiting and instead argues that waiting affects the ‘time left’ for people with MND. It also offers up a lens through which to view time through the multiple textures and tensions of waiting produced through chronic illness.

Item Type:Articles
Keywords:Motor Neurone Disease; waiting; power; emotion; time
Status:Early Online Publication
Refereed:Yes
Glasgow Author(s) Enlighten ID:Ferrie, Dr Joanna and Wiseman, Dr Phillippa
Authors: Ferrie, J., and Wiseman, P.
Subjects:H Social Sciences > HM Sociology
College/School:College of Social Sciences > School of Social and Political Sciences
College of Social Sciences > School of Social and Political Sciences > Sociology Anthropology and Applied Social Sciences
Research Group:Institute of Health & Well-being
Journal Name:Time and Society
Publisher:SAGE Publications
ISSN:0961-463X
ISSN (Online):1461-7463
Published Online:08 August 2016
Copyright Holders:Copyright © 2016 SAGE Publications
First Published:First published in Time and Society
Publisher Policy:Reproduced in accordance with the copyright policy of the publisher

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