Exploring the psychological impact of Mayer-Rokitansky-Kuster-Hauser syndrome on young women: an interpretative phenomenological analysis

Patterson, C. J., Crawford, R. and Jahoda, A. (2016) Exploring the psychological impact of Mayer-Rokitansky-Kuster-Hauser syndrome on young women: an interpretative phenomenological analysis. Journal of Health Psychology, 21(7), pp. 1228-1240. (doi: 10.1177/1359105314551077) (PMID:25293965)

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Abstract

This study explored five young women’s experiences of living with Mayer–Rokitansky–Küster–Hauser to offer a unique insight into the social challenges of Mayer–Rokitansky–Küster–Hauser in the transition to adulthood. Non-directive semi-structured interviews took place within the National Health Service settings, and transcripts were analysed using interpretative phenomenological analysis. Four inter-related themes were identified: hindering independence, a sensitivity to difference, managing intimacy and managing threat to identity. The women managed their presentation to others in order to minimise the impact of their diagnosis. Recommendations for further research and implications for services are noted.

Item Type:Articles
Status:Published
Refereed:Yes
Glasgow Author(s) Enlighten ID:Jahoda, Professor Andrew
Authors: Patterson, C. J., Crawford, R., and Jahoda, A.
College/School:College of Medical Veterinary and Life Sciences > Institute of Health and Wellbeing > Mental Health and Wellbeing
Journal Name:Journal of Health Psychology
Publisher:SAGE Publications
ISSN:1359-1053
ISSN (Online):1461-7277
Published Online:07 October 2014

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